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Transplant patients - anyone get anemia or Parvo Virus?
Transplants | Last Active: 18 hours ago | Replies (81)Comment receiving replies
Yes up next is the appmt to go over the bone marrow biopsy with hematologist. I’m also going to ask him whether he thinks hubby can restart Everolimus under slower titration and better monitoring. TBH I don’t think he is in favor of anyone using this drug unless absolutely necessary. Then off to see home neph o 08/01 to discuss (possible) change to txplant regimen. Mayo Az and UCLA use the same medical platform(MyChart) so they can share/access each other’s notes.
My biggest concern as you know is the “new” txplant regimen and how it affects hubby. Prednisone not only spikes blood sugar, but thins bones and causes more cataracts all of which hubby are already having issues!!
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Hi @caretakermom
I am happy to hear that both facilities are on MyChart for easy access to the biopsy results.
Maybe the biopsy results will available on MyChart in tbe next couple of days, and the med discussion can be moved up too.
I can totally understand the urgency you are feeling about prednisone. My Aunt was put on prednisone when she was in the hospital for pneumonia. She is a diabetic and it took her weeks after stopping prednisone to get her sugars back in order. It was very upsetting, so I completely understand how you and hubby are feeling.
The sooner this gets resolved, the sooner we will all be happy!