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Transplant patients - anyone get anemia or Parvo Virus?

Transplants | Last Active: 18 hours ago | Replies (81)

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Hi @caretakermom
Good morning! I hope you and hubby had a well-deserved good night's sleep after that long procedure day at UCLA.
You never have to apologize for a delayed response on a procedure day. I know how those days go...exhausting!
I am happy to hear that all went well with no pain or issues for hubby.
I am also super happy to hear that your wonderful UCLA hemotologist is being so thorough and complete with his evaluation and diagnosis. Especially if hubby had platelets issues pre-transplant.
I am very thankful that he is looking for Parvo, CMV, etc. so the final diagnosis of what caused the trouble will be accurate and correct.
Mayo AZ was correct to push for the bone marrow biopsy in this situation, instead of assuming, and then being wrong.
You definitely have the top and best healthcare with Mayo as your transplant center and UCLA as your hemotologist.
Like you, I am looking forward to the final diagnosis of what caused the trouble and the best way to move forward so hubby can continue on his merry way (and get rid of the prednisone).
It sounds like the next stone on the path is your appointment with the UCLA hemotologist on the 24th to hear the results of the testing.
And then September 1st you meet with the nephrologist for the medication adjustment discussion.
Is that the next two steps?
Maybe your home neph will speak with the Mayo AZ nephrologist once he has the final biopsy results (and sends a copy to Mayo), so everything can be finalized at your September 1 appointment or even sooner!

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Replies to "Hi @caretakermom Good morning! I hope you and hubby had a well-deserved good night's sleep after..."

@hello1234

Yes up next is the appmt to go over the bone marrow biopsy with hematologist. I’m also going to ask him whether he thinks hubby can restart Everolimus under slower titration and better monitoring. TBH I don’t think he is in favor of anyone using this drug unless absolutely necessary. Then off to see home neph o 08/01 to discuss (possible) change to txplant regimen. Mayo Az and UCLA use the same medical platform(MyChart) so they can share/access each other’s notes.
My biggest concern as you know is the “new” txplant regimen and how it affects hubby. Prednisone not only spikes blood sugar, but thins bones and causes more cataracts all of which hubby are already having issues!!