Barrett’s esophagus

Posted by jvanstratten @jvanstratten, Mar 22, 2018

Looking for info and help with Barret’s esophagus. I can’t figure out just how serious this is. I have read way too much online! I don’t really know how strict my diet really has to be. It is really stressful-. Does anyone here have it? And exactly how serious is it?

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My husband is 72 yrs young and was diagnosed with Barrett’s in his 40’s. At that time he has his esophagus stretched probably 4 times over the first 4 years and has taken prescription strength omeprazole for ever since. He no longer has any sign of Barrett’s.
At the time he was diagnosed he couldn’t get through a meal without choking or feeling as though food was stuck in his throat.
He was told at that time by his Dr. that all people who were diagnosed with esophagus cancer started with Barretts syndrome, but not all those with Barretts ended up with esophagus cancer.
He was also told it was hereditary as his mom died of esophagus cancer and his siblings struggled with Barretts syndrome.

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Profile picture for marjoriem @marjoriem

@khowe2000 Find another GI doctor asap. I had GERD, and hiatal hernia, and was on 40mg of omeprazole. the strong strength of the omeprazole caused severe constipation so I had to get off of it. My acid reflux was horrible and it got to the point that I could hardly eat anything that didn't cause the acid reflux. Long story short, I had Hiatal hernia repair and esophageal valve repair surgery this past March. It is called the TIF procedure with hiatal hernia repair. I had two surgeons do the surgery. The worst part of the surgery is post surgery because of the liquid diet/soft food diet for 6-8 weeks but it was well worth it! I am back to my normal diet and I am off of all acid reflux meds and no longer have any acid reflux. Good luck to you!

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@marjoriem
Dearest Marjoriem,
I find it very interesting that your doctors could perform both the
Esophagus valve and Hiatal Hernia repair ( different docs) at the same time.
I’m a former MN resident and will consider returning ( Mayo) if both the TiF and Hiatal can be completed with 2 sep surgeries /same day. I now reside in TX and have been told it is not possible
To perform a hernia repair and esophagus. They advise against a TIF as not helpful??
It sounds like, Even though a few months, that this is helping your health issues? Please respond, if you could with the Medical clinic and or city where the surgery was performed. I will research further!
Blessings, Diane

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Profile picture for riflemanz64 @riflemanz64

Low acid diet, no soda, booze, orange juice, no tomato products, no fried foods, no coffee, I bought low acid coffee from Amazon and have 1 cup a day. PH is 6.18. No acidic fruits or veggies. I drink one cup of skim milk for breakfast with my cheerios, then it's water all day.
For lunch I have some fat free plain yogurt with a turkey sandwich. I also have some melon chunks. I eat a lot of baked chicken breasts for dinner with a baked potato and steamed broccoli. If I want dessert I have angel food cake topped with fat free cool whip.
I also have baked fish for dinner too. I also walk a lot for exercise. I'm now up to 5-7 miles a day. That's my diet. If anyone wants to share what they are drinking besides water that's safe for the esophagus please post it.

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@riflemanz64 What's the name of your low acid coffee from Amazon with the pH of 6.18? Thanks.

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Health wise coffee went out of business so now I buy Alex’s low acid organic coffee half caffeine on Amazon. I have a drip bunn coffee maker 10 cups so I only use 3 tablespoons for it.

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Get it treated asap. If you can and doctor agrees, get it dissected and be done with it. If left untreated it can develop into cancer as was my case. At that point I had to get a major surgery where my esophagus and part of my stomach was removed. The endoscopic procedure to ger Barrets dissected can be done in 30 minutes and you will be back home next day. Get it done.

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Profile picture for manuelo @manuelo

Get it treated asap. If you can and doctor agrees, get it dissected and be done with it. If left untreated it can develop into cancer as was my case. At that point I had to get a major surgery where my esophagus and part of my stomach was removed. The endoscopic procedure to ger Barrets dissected can be done in 30 minutes and you will be back home next day. Get it done.

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@manuelo how long ago did you have (whatever it was) procedure done? has it helped you?

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Profile picture for tpinheiro29 @tpinheiro29

@riflemanz64 What's the name of your low acid coffee from Amazon with the pH of 6.18? Thanks.

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@tpinheiro29 you can often get low acid coffee at a local Health Food Store. I found it more expensive on Amazon. I have a small hiatal hernia and Barrett’s esophagus that according to my last endoscopy now has reduced from Barretts to some abnormal cells but not enough to be called Barretts any longer. I take pantoprazole 40 mg in the morning and famotidine 40 mg at night for indigestion.

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Thank you @nancyclare for the time taken to respond to my low acid coffee question. I did not know what I had was silent/night reflux (for the many years) until the first bite of my food (if eaten fast) or a piece of meat did not go down smoothly. Besides esophageal inflammation and a stricture (receiving dilations now), the other diagnose is a "small area of Barrett's esophagus without dysplasia." I was on Dexilant for three months. The doctor switched it to Pantoprazole 60 mg twice/day (I guess he was concerned of the hassle of insurance approving it). I am self-pay and let him know, that if Dexilant was a good fit for me, I would like to return to it. The morning is fine with Pantoprazole, but the evening dose causes me bloating, burping, gas and even epigastric discomfort. I have notified GI of the same and if he wanted to change PPI again. I like the idea of Pantoprazole in the morning and Famotidine in evening. Will ask GI if that would work for me. All the best to you.

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Profile picture for tpinheiro29 @tpinheiro29

Thank you @nancyclare for the time taken to respond to my low acid coffee question. I did not know what I had was silent/night reflux (for the many years) until the first bite of my food (if eaten fast) or a piece of meat did not go down smoothly. Besides esophageal inflammation and a stricture (receiving dilations now), the other diagnose is a "small area of Barrett's esophagus without dysplasia." I was on Dexilant for three months. The doctor switched it to Pantoprazole 60 mg twice/day (I guess he was concerned of the hassle of insurance approving it). I am self-pay and let him know, that if Dexilant was a good fit for me, I would like to return to it. The morning is fine with Pantoprazole, but the evening dose causes me bloating, burping, gas and even epigastric discomfort. I have notified GI of the same and if he wanted to change PPI again. I like the idea of Pantoprazole in the morning and Famotidine in evening. Will ask GI if that would work for me. All the best to you.

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@tpinheiro29 I also use a product called “acid soothe“ that I get on Amazon for breakthrough during the day. I don’t often use it, but when I do need it i’m glad that I have it because it seems to help a bit. I would never use it too close to my doses of Famotidine or pantoprazole. The other thing I’ve been known to do in a pinch is to just take a small swallow of Pepto-Bismol to coat my stomach.
There is dysplasia with my, I’m told, no longer Barrett’s.
I have not been happy with my gastroenterologists here in New Hampshire, so I’m trying to get into a Boston MA hospital.

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Do you have acid reflux. A Gastro doctor has ways to monitor.
There are low acid books that can help guide one.
I have been diagnosed with hiatal hernia and Barret's esophagus.
I try to limit acidic foods as much as possible.

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