Anyone have success with immunotherapy for kidney cancer?

I had 19 Keytruda treatments over a two year period; because of my age I did not have removal of my kidney which had the malignant lesion, which urologist recommended. My last infusion was November last year. My last two ct scans which were done July last year and February this year were clear with no visible lesion and no cancer spread. I have another ct scan this week, and I hope it remains clear.

@colleenyoung Stage 4. 3 months immunotherapy. 4 months cabometyx

My third CT done this month shows no spread of cancer and malignant kidney lesion is still no longer visible on scan. That means the three scans done over a twelve month period have remained clear. I am confidant that the 19 Keytruda treatments I had which ended in November of last year had something to do with this. As I pointed out before, I opted out of having total nephrectomy done as urologist suggested be done when malignant tumor on left kidney was diagnosed in March of 2023. Keytruda and five high does radiation done in 2024 to stop bleeding were the only treatments I had.

@ronsale
My 53 year old son had a right nephrectomy last January. He had clear margins but a high rating so he did the Keytruda treatments with few side effects.
I found your note encouraging for a mother who had kidney cancer in 1964 with an nephrectomy. Praise God I am still here.!

I was first diagnosed in 2013. Had a partial nephrectomy of R kidney. No follow up treatment.
In 2021 RCC was found in my stomach. Did one infusion of Keytruda. Liver enzymes went crazy and had to stay on steroids for a long while. It has now metastasized to my pancreas, lungs, and recently to my R lower leg. This is the first time to have pain. Had radiation to the leg.
Been on Lenvima off and on since March. Just had scans. Most lesions are decreasing with the exception of my pancreas.
Dr wants me to add Keytruda.
Not sure what I will do.
But I’m still here. Current age 64.

@bobinaz, how are you doing on immunotherapy and targeted therapy?

@rm3bhm, did you decide to try Keytruda? Do you have a palliative doctor to help with pain management?

No Keytruda for now.
I’m fortunate. Only pain has been in my right leg. Since the radiation, it is not as bad.

After 6 months on Cabozantinib, 60 mg for 3 months then 40 mg for 3 months due to side effects, my last scan came up clear! For 3 months I am on what my doctor calls a "Treatment Holiday" or meds free. I will scan again after 3 months and see if I need to go back on it. While on the meds I think I experienced every side effect there was. The worst one, besides the bloody nose incidents, was the foot sores. They got so bad I was going to take a break from treatment even without a clear scan. Praying my next scan around Halloween comes back clear again1