Anyone else feel Isolated and not go out due to chronic pain?

Posted by joannef20 @joannef20, Dec 23, 2025

Hello, I’m new here, I was recommended to join and interact with others who are in a similar situation as myself, I don’t go out much due to chronic pain and I feel isolated, anyone else feel the same?

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Profile picture for resilience @resilience

@debrap57
Exactly how did the first PT treat you?
Were you asked to do exercises? I understand the spasming. It has to be addressed very tenderly and then deeper layers in time. Stretching and strengthening are no no s initially then very gradually.
Open conversations with your therapist are very very important. It really is a yo-yo condition but if you keep going back at least twice a week, you should see improvement. If the first therapist was too aggressive- You must tell that therapist. everybody’s different therapist tend to not understand that it takes a long time to release them. and sometimes they never fully release alobg with the muscle spasm payback. But the PT can release the muscle spasm that was cost. I live in that cycle of release and spasm that’s why insurance is important. I’ve also found dry needling done by a PT helpful, but it didn’t include stretching and strength strengthening. using binders ice heat vibration rest and being careful about using core muscles too much is important. having adhesions for a long time means you are going to be uncomfortable most likely, and it is going to hurt to work on them. Don’t give up.

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@resilience the PT would manually work on releasing the adhesions. She did have me do exercises. At one point she had me using the elastic pull down and stretch side to side. She said it was important to keep moving so the adhesions don't harden and get worse. I can't even walk correctly. She told me to stop walking on the walking pad. But my muscles have become so weak because I've become more sedentary. I had 2 orthopedic surgeries last year that had me non weight bearing for several months. She showed me stretching exercises but said do them every other day. What are your thoughts? Should I be slow walking on the pad ? Should I be stretching? I haven't socialized because I can't sit up. It's ridiculous. Have your adhesions affected your stomach and digestion?

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I have been through the exact same thing but I also have HEDS hypermobility disorder. It amplifies the severity. Could you be hypermobile? Ehrlos Danlos
My opinion of dealing with this for 22 years 3 ab surgeries w complications:
Walking is an excellent exercise. Never stop. And get outside even for a short while.
Resistance bands weights, stretching can create more pain via muscle spasm. Tiny small range exercises - only 5 of each then stop. If possible, Use heat before. Never ever force stretching. It sounds like your first PT went overboard ——-
Say NO to PT when asked to do something you know you will suffer from. Stick to the five very small range stretches or exercises absolutely no more until there’s no reaction. It’s really necessary to have the hands on tearing out of the adhesionsand loosening of the muscle spasms. Use acupressure tools and anything you can get your hands on to work on your Abdominal area. My digestion is greatly affected. I go from constipation to gastric dumping. If I’ve been overworked often, the gastric dumping happens first then it’s followed by constipation because the abdominal muscles have spasm. My PT can usually loosen those app spasms and I feel OK. So the next time I have to have smoothies for breakfast and take vitamin supplements I don’t eat anything that’s too high fiber or can’t chew. I rarely go out to eat because I don’t know how I’m going to react.
Despite the pain and discomfort, I keep telling myself motion is lotion and I pay the consequences. It’s hard to get out of bed, but we have to. We should pay very careful attention to how we use our body and it should be ergonomic. no twisting.
If you’re getting such severe reactions, then you must not only tell your PT but you can simply say no. I don’t think I should do that today. I also know that I have to leave 24 to 48 hours for a bad reaction to something I may have done whether it was an exercise or a chore or something. I ate that the adhesions did not like.
I also use a binder when I’m not feeling well. I frequently put on gigantic or extra long hair elastic bands that fit around my waist to get the counter pressure and get my mind off of the nausea and the tightness.
It sounds to me. You should get those hydrophilic pads and keep placing them on your stomach and then get up and move around. You can also use your fingers or an acupressure tool to spread your ribs apart and try to find the location and release the spasm I am working on trying to find a Doctor Who treats a ACNES via ultrasound guided pain block.
I take zofran for nausea Valium helps w the nausea spasm too. I take fioricet for migraine and movement which helps me function.
Bottom line: hand on Myofascial release
( painful but good) Diaphragmatic breathing, binder, walking, meds
1/4 range of a stretch, only a few reps of a new exercise or any exercise till proven ok, be a skeptic. 💗

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Profile picture for judygiampa @judygiampa

@joannef20 Hi, Joanne, I too, do not go out very often, just go to Dr’s appointments. I have Neuropathy in my right arm, along with a torn rotator cuff for the second time, this leaves me with absolutely NO use of this arm, I look to others like I am just fine, I also put on a very happy face when I do go out. I cannot do so many things I want to do. My husband does help me dress, shower, comb my hair, cut my dinner when needed, cooks the meals and he does all the shopping, drives me to all appointments I may have. I am fortunate to have him, I do agree with you about him not understanding how severe the pain be at any given time. We don’t have any children or family close by to help, we do have friends, but, I don’t want to ask for help. My biggest ask would be for all levels of medical care would care more about their patients and try to find the cure for “NO CURE” Diseases, NEUROPATHY, ARTHRITIS, & OSTEOPOROSIS and others and stop giving us medications that cause Dementia!

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@judygiampa
I’m with you! We are both blessed with great husbands
and I don’t want any more prescriptions that mess with my brain.
Good luck!

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