My wife has Lewy body dementia. She is in her fifth year and deteriorating rapidly. My suggestions would be to learn everything you can about the disease, its progression, and its management. I have found that a lot of healthcare providers, including nurses and physicians, don’t really know much or anything about it. I’ve also found that I need to be very assertive in getting my wife that care she needs. The other and equally important thing is to take care of yourself. We hear that all the time, but I’m telling you it is essential. Good luck to you.