Burning mouth syndrome

Posted by honduranexpat @honduranexpat, Jan 31 5:15pm

I was diagnosed with Burning mouth syndrome 4 years ago. It has progressively become worse. I have been given so many different medicines that I can hardly count them and none of them are effective. I'm in counseling now, read all I can about upcoming research. I'm just looking for someone to talk to about it

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helennicola | @helennicola | Mar 29 8:06pm

In reply to @linda1976 "@helennicola Thank you so much. I have not heard of l-lysine tablets. I will give them..." + (show)

@linda1976 you’re welcome, it comes in capsule form also, hope it helps.

helennicola | @helennicola | Mar 29 8:09pm

In reply to @linda1976 "@mizuzfritz Maybe, mine started with dry mouth and then turned into burning." + (show)

@linda1976 I also had dry mouth due to my SFN but that resolved on its own.

carolman210 | @carolman210 | Mar 30 9:56am

I have recently been diagnosed with burning mouth syndrome. I am sure that it is because my mouth is so dry. I have recently been given medication to stimulate my salivary glands Cevimiline. I start today. Has anyone used this medication for dry mouth?

ladychristian2 | @ladychristian2 | Mar 30 4:12pm

I have had BMS since having Covid back in January of 2020, it appeared about 3 weeks after I was sick. I had a severe case of Covid and I am a long COVID person …. It’s all over the place, sometimes my tongue burns to the roof of my mouth….I am also a diabetic… somedays I can’t focus… I still don’t have full taste or smell, only maybe 20%… sometimes when I do taste, my mouth taste like I sucked on Pennies… please any advice !!!!!!’

have2bowl | @have2bowl | May 28 5:52pm

In reply to @kinura8 "I purchased the Burning Mouth Syndrome Survival Guide on Amazon. Written by a lady who struggles..." + (show)

@kinura8 How did the appointment go? I just saw an oral pathologist at a large hospital and all they did was give me a diagnosis and prescribe the usual first-line course of drugs. Didn’t make any attempt to maybe find out why it’s happening. I have a neurologist appointment back at home tomorrow where I am going to push for some imaging. Not one Dr. I have been to in the past five months, and I’ve been to a lot of them, seems interested in finding the cause of it. I find that ridiculous since there are some causes that can be reversed.

briana1976 | @briana1976 | Jun 5 2:12pm

I recently started experiencing symptoms of BMS after a short stint of wearing Invisalign. I have no idea if they’re connected but timing is suspicious. I’m in menopause and apparently that combined with a dental procedure can trigger this condition. I experience intense burning on my tongue, roof of my mouth, and gums and teeth pain that feels like it’s in the roots. Or starts out mild in the am but by evening is so intense! Trying HRT and Acid Reflux meds but so far nothing has helped. I’ve been going through this since Mar 2026 and it’s really affecting my mood and quality of life. My PCP and ENT seem not to know much about it or how to help. Any advice for a new sufferer is greatly appreciated. Thank you!

notgonnadoit23 | @notgonnadoit23 | Jun 6 11:22am

Try Ketamine therapy. It enables your brain to process pain in a less intrusive way. Worth a shot.

tatiana1971 | @tatiana1971 | 4 days ago

Hi, I just found this page, it comes as a great relieve, that other people are familiar with this awfull illnes and have some information about it.
I have BMS probably about a year. For 4 years I do not have any taste or smell / after Covid/.
Im sort of use to it now, but BMS is much worse:(
I am at my wits' end with it, tried every doctor possibile, if anyone could help, pls, share.
Its so depressing.:(
Anyway, have a lovely day everyone.