Anyone had Concurrent Radiation and Chemo Therapies?

Posted by andycapp @andycapp, Mar 4 10:56am

Lower Left lobectomy is off the table. Surgeon said that even if I survived the surgery, my quality of life would be severely diminished (limited lung capacity).
So I will begin concurrent proton radiation and chemo therapies on March 9.
Has anyone here gone through these concurrent therapies? Any suggestions?

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Profile picture for andycapp @andycapp

@mamajite Who can i reach out to that has utilized this technology?

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@andycapp both @kakalena and @ladylennie have had the procedure.

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Profile picture for andycapp @andycapp

@mamajite Who can i reach out to that has utilized this technology?

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@andycapp I had Aliya 9n June 29. It is basically a bronchoscopy with biopsies and lavage. They get immediate analysis. If malignant they then use Aliya, which is pulsed electric field ablation. I had no side effects. The Dr was optimistic that it worked but we won't know until early October when I'll have a ct to see if the nodule is gone.
I found the procedure from an Ai search and was very lucky that one of the trial doctors was at my local hospital. I then checked with my regular pulmonologist and oncologist and they agreed.
You might want to check with your doctors to see where Aliya is used.
For me, it was wonderful, since I already had a lobectomy and wedge, as well as chemo and immunotherapy. I had been misdiagnosed with intrapulmonary metastasis and recently found that I actually have multifocal primary lung cancer. So I most likely with have additional nodules show up. I would never hesitate to do Aliya again. There's no loss of lung function and pretty much just the normal risk of a bronchoscopy.

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Profile picture for ladylennie @ladylennie

@andycapp I had Aliya 9n June 29. It is basically a bronchoscopy with biopsies and lavage. They get immediate analysis. If malignant they then use Aliya, which is pulsed electric field ablation. I had no side effects. The Dr was optimistic that it worked but we won't know until early October when I'll have a ct to see if the nodule is gone.
I found the procedure from an Ai search and was very lucky that one of the trial doctors was at my local hospital. I then checked with my regular pulmonologist and oncologist and they agreed.
You might want to check with your doctors to see where Aliya is used.
For me, it was wonderful, since I already had a lobectomy and wedge, as well as chemo and immunotherapy. I had been misdiagnosed with intrapulmonary metastasis and recently found that I actually have multifocal primary lung cancer. So I most likely with have additional nodules show up. I would never hesitate to do Aliya again. There's no loss of lung function and pretty much just the normal risk of a bronchoscopy.

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@ladylennie thank you. I will talk with my oncologist about this procedure. I’m not too excited about possibly going through with radiology again since it results in additional and possibly ongoing fibrosis.

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Profile picture for andycapp @andycapp

@mamajite Who can i reach out to that has utilized this technology?

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@andycapp
I had the Aliya on 4/23/26. As of my CT scan on 08/04/26, there has been shrinkage of the treated nodule as well as an adjacent one. They were comparing the new CT to one of 6 weeks ago so I will have to do a little math to compare it to the scan pre treatment in March, but will report back when I have more data.

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Profile picture for kakalena @kakalena

@andycapp
I had the Aliya on 4/23/26. As of my CT scan on 08/04/26, there has been shrinkage of the treated nodule as well as an adjacent one. They were comparing the new CT to one of 6 weeks ago so I will have to do a little math to compare it to the scan pre treatment in March, but will report back when I have more data.

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@kakalena great news. Seems like it worked.

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Profile picture for andycapp @andycapp

Met with my medical oncologist yesterday concerning the upper left lobe nodule. She wants to wait until I have my next CT scan in October. Once again, patience is essential to my mental/philosophical approach to dealing with the up's and down's of cancer diagnosis and treatment.

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@andycapp
Yes, patience. But I’ve decided that if waiting is what we as patients must do, then the doctors aren’t feeling an urgency about treatment.
I was diagnosed in late June with a recurrence of lung cancer after more than 6 years. 2 nodules, 2 tiny nodes. Here it is, August 9, I’ve had a PET, but still need a brain MRI and blood test results before we can even think about a treatment plan. I’m praying for mid September at the latest.
Praying for you and your healing. Never give up!

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Profile picture for mattieg @mattieg

@andycapp
Yes, patience. But I’ve decided that if waiting is what we as patients must do, then the doctors aren’t feeling an urgency about treatment.
I was diagnosed in late June with a recurrence of lung cancer after more than 6 years. 2 nodules, 2 tiny nodes. Here it is, August 9, I’ve had a PET, but still need a brain MRI and blood test results before we can even think about a treatment plan. I’m praying for mid September at the latest.
Praying for you and your healing. Never give up!

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@mattieg My patience is in agreeing to see what the next CT scan shows regarding the new nodule. I have been and will continue to be persistent about moving forward with treatment.

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Profile picture for ladylennie @ladylennie

@kakalena great news. Seems like it worked.

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@ladylennie
Yes, I believe it has. Thank you.

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Profile picture for mattieg @mattieg

@andycapp
Yes, patience. But I’ve decided that if waiting is what we as patients must do, then the doctors aren’t feeling an urgency about treatment.
I was diagnosed in late June with a recurrence of lung cancer after more than 6 years. 2 nodules, 2 tiny nodes. Here it is, August 9, I’ve had a PET, but still need a brain MRI and blood test results before we can even think about a treatment plan. I’m praying for mid September at the latest.
Praying for you and your healing. Never give up!

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@mattieg, I was diagnosed six years ago too, stage IV, and I'm still doing well on my initial treatment. I think overtime we get better at dealing with new nodules and scary stuff. That doesn't mean that we can't, or shouldn't, push our doctors when we need something. 🙂
What type of lung cancer did you have the first time? Has your blood been sent for biomarker testing already? Those do take some time. I wish they were quicker.

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Profile picture for Lisa, Volunteer Mentor @lls8000

@mattieg, I was diagnosed six years ago too, stage IV, and I'm still doing well on my initial treatment. I think overtime we get better at dealing with new nodules and scary stuff. That doesn't mean that we can't, or shouldn't, push our doctors when we need something. 🙂
What type of lung cancer did you have the first time? Has your blood been sent for biomarker testing already? Those do take some time. I wish they were quicker.

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@lls8000
It’s wonderful you are doing so well! Keep it up!
I had Stage lll adenocarcinoma. 16mm nodule, and because it got lonely, it brought in a tiny node that the doctor wasn’t even sure was involved. Just 25 radiations and 5 chemo treatments to be sure. Yes, my blood was sent off over 3 weeks ago, but my oncologist is waiting on the brain MRI to see me. This is where the patience has to come in. But as I told my 36 year old son last night, I feel I’m in a better mind space this time. Knowing it’s contained in one lung, pretty much knowing what to expect if we do the same radiation/chemo, what the steps are. I refuse to fear it, just hate it!
Keep going yourself! We are more than warriors, we are conquerors!

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