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Primary Sclerosing Cholangitis (PSC)

Transplants | Last Active: Jun 10 6:35am | Replies (93)
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@rodney9999

I did have mobility issues big time. I showed no symptoms until my early 40s when during a routine lab draw my labs were all over the place. My diagnosis was attributed to 100% alcohol. I did drink in my 20s and 30s however it seems real fishy to me this was the only reason given what I consumed. I did have an MRI that recommended Ercp however it was never conducted due to risk factors given my higher INR. I also never had a liver biopsy done.

Also I was tested for celiacs and was positive for both gene pairs however I have not had a small intestine biopsy yet due to my recent transplant.

I’m just very fortunate to have been transplanted and have been doing well 2 months post op.

So to answer your question, I’m not sure I guess 🙂

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Replies to "I did have mobility issues big time. I showed no symptoms until my early 40s when..."
Rosemary, Volunteer Mentor | @rosemarya | Jun 18, 2019

@rodney9999, @marvinjsturing, @contentandwell
Wow! Just look at us. Different medical issues, and the same bothersome swelling. I think it really illustrates what my doctors have always said about us each being different. I marvel at the skill and knowledge that my doctors used to discover my disease and necessary care that led to my transplant. It was a miserable and frightening journey. There were times when I didn't know whether I would live long enough for transplant. I celebrate that I am beyond that, and as a result I take good care of these precious life saving organs. However, my heart is heavy with concern and caring for those who are currently experiencing their own complex issues while waiting and hoping for a transplant.
@contentandwell, I still shed tears,and so does my family when we remember those times.
@marvinjsturing, I commend you for the strength and determination that you have demonstrated to bring you where you are today.
@rodney9999, I am happy that you are doing well with your new liver. Thank you for posting this question about swelling. Regardless of the underlying cause for transplant we are here for each other. I welcome you to continue to ask questions and to read (and participate) in any of the discussions on Connect. You are among friends here and we would be happy to help you adjust to your new way of living with a transplanted organ.
Rodney, I only asked you about the PSC because there is a PSC Page that contains up-to-date research information about PSC as the search is ongoing for a cure. https://connect.mayoclinic.org/page/psc/

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