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DiscussionPrimary Sclerosing Cholangitis (PSC)
Transplants | Last Active: Jun 10 6:35am | Replies (93)Comment receiving replies
Replies to "I was just curious if anybody out there experienced bad lower leg pain and swelling prior..."
@rodney9999, I received my simultaneous liver and kidney transplant for PSC in 2009. I don't remember having a specific lower leg pain with swelling . However I did experience swelling in my legs, feet and ankles (edema) along with fluid accumulation in my abdomen (ascites). I went from being a daily walker to being barely able to walk across the room. I was hospitilized for acute kidney failure, and placed on dialysis. I remember that my nurses had to lift my legs for me because they were so swollen and I was so weak. Physical therapy, dialysis, and my desire to recover, helped me to regain my movement, along with reduced edema. I also had many paracentesis procedures to drain the ascites. Like you, the swelling went down after my transplant.
Rodney9999, Did you have any mobility issues prior to your transplant? I'm curious, Are you a PSCer?
@rodney9999 I had a lot of swelling in my feet and lower legs but my liver problem was cirrhosis. Before I knew I had cirrhosis we were traveling and my feet got so swollen that I had to buy a cheap pair of beach shoes to wear, nothing else would go on my feet. Until shortly before my transplant I had some minor swelling and had to really watch my sodium. About six weeks before my transplant my feet swelled again as they had when we were traveling, I could only wear slip-on slippers. I also developed ascites then and felt like I had a barrel around my body. I had lost weight (intentionally) and saved some of larger clothes. If I hadn’t I wouldn’t have had anything to wear.
My transplant came through two months sooner than we expected, what a blessing that was.
JK