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Blood Cancers & Disorders | Last Active: 7 hours ago | Replies (38)

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@dmcj

My daughter had a bone marrow biopsy under sedation. It was painful and she is still feeling pain a year later and is unable to walk properly. We are going to Mayo to assess her ET Jack to diagnosis because she’s allergic to Beyer Remi and the Pegasus makes her ill and since it’s a weekly injection, she doesn’t have a life. She doesn’t have a life right now anyway because she can’t walk very far and is constantly nauseous and extremely fatigued we’re going to Mayo in Minnesota mid September. I’m wondering if anyone here has had a reaction similar to this from a bone marrow biopsy and if so, did it resolve itself she’s had two injections in her hip in her lower back and they have not worked. I don’t know whether another option is except for deadening the nerve and I’m not sure if that’s possible I’m really scared. I’m really disappointed and she’s only 24.

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Replies to "My daughter had a bone marrow biopsy under sedation. It was painful and she is still..."

conniekostiuk | @conniekostiuk | 4 days ago

@dmcj that sounds horrible. So very sorry to hear. Hopefully Mayo can give you the answers you need. Prayers

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hanya | @hanya | 3 days ago

@dmcj
Hi friend! I feel very bad for your daughter and all of you ! My first three BMB WERE DONE IN DOCTORS OFFICE ! The last one , hurt so bad if I was standup I would have passed out!!
My fourth one , new doctor new hospital! I told them I must be put to sleep and do not want to feel or hear anything!
So my MPN SPECIALIST ARRANGED FOR THAT !
After I woke up , I felt no pain ! The PA HAD PERFORMED SUCCESSFULLY BIOPSIES
NO BLEEDING NO PAIN NO BRUSE !!
That is the way a patient should feel !!
Even my first three BMB HIRT ONLY DURING THR PROCEDURE!! NOT AFTER!! It is A CRYING SHAME THAT YOUR YOUNG LOVED ONE HAD TO SUFFER !! I am sorry for what she is suffering through 🥵🥵I would not go back to same place for another biopsy!!
I do not know what and how it was done to cause long term pain ! Will THINK OF HER AND PRAY THAT SOMETHING CAN BE DONE TO HELP HER !
Keep looking for answers and hope you will find help for her ! GOD S BLESSING

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