← Return to Primary Sclerosing Cholangitis (PSC)

Discussion

Primary Sclerosing Cholangitis (PSC)

Transplants | Last Active: Jun 10 6:35am | Replies (93)

Comment receiving replies
@jacinta

I had an ERCP on 15th May and unfortunately it didn’t get rid of the scratching. I contacted my Nurse and Specialist. I begged them not to let me slip through the cracks. Both ignored me.
However, The Doctor that performed the ERCP had his Nurse contact me. An appointment was set up for 5/28. When the Nurse saw me, I could see her reaction to my body that was full of scabs and blood from scratching. She wanted to have blood work done immediately, but that Department was closed. She begged me not to fly home to Ireland, but I had my flight paid. I had only 90 minutes to get to my flight to check in etc. I told that Nurse that my own Nurse and Doctor ignored my begging plea to see me before I flew home and ignored me.

Anyway, I returned from Ireland, had blood drawn. I’m now waiting for an MRI on 24th June. Until then, I continue to destroy my body by scratching

Jump to this post


Replies to "I had an ERCP on 15th May and unfortunately it didn’t get rid of the scratching...."

@jacinta, Who is monitoring your PSC?

@jacinta, I send you my thoughts and hopes that your June 24th MRI provides enough information for a treatment and relief for your itching.