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Primary Sclerosing Cholangitis (PSC)
Transplants | Last Active: Jun 10 6:35am | Replies (93)Comment receiving replies
Hi, jenchavez. I would like to welcome you to Mayo Connect. My own PSC history is what brought me to Connect. After my transplant in 2009, I was looking others who shared my own transplant experience. That is when I discovered Mayo Connect. I enjoy being able to learn from others and to share transplant experiences that we have in common. I am in awe over the amount of caring and support transplant patients offer to each other. I appreciate what you have shared about the PSC Partners. We PSC'ers know what a lonely disease we share.
I am also excited to share the new PSC Pages that the Mayo Experts have recently opened. Have you seen it yet? https://connect.mayoclinic.org/page/psc/
jenchavez, In addition to your group affiliation with the PSC Partners, would you share a little about your own personal connection with PSC? Are you a patient? Cargiver? Family member?...
I look forward to hearing more from you.
Replies to "Hi, jenchavez. I would like to welcome you to Mayo Connect. My own PSC history is..."
@rosemarya I am wondering if this is a good platform for me to highlight some important news from PSC Partners. For example, PSC now has its own ICD-10 code. We are working to get the word out. Would that type of information fit on this platform?
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Hi, @rosemarya. I'm sorry I didn't see this message until now. I am the communications director at PSC Partners. I am new to the organization and still learning about the disease, but I am thrilled to be a small part of moving the organization forward as we support the PSC community and search for a cure.