← Return to A Summary of My Multiple Myeloma
DiscussionA Summary of My Multiple Myeloma
Blood Cancers & Disorders | Last Active: Aug 15 3:15pm | Replies (86)Comment receiving replies
Replies to "1st time post. Found out in May 2024 that I have T-Pll, was lucky enough to..."
@2024fightthefight
👋 Hello!!
I have TPLL and am currently on Campath infusions - week 3.
Last week, the stem cell transplant coordinator came to visit me during my infusion to discuss a Allogenic stem cell transplant when I finish my Campath treatment. At first I was excited about this option, but after reading all the information in the stem cell transplant booklet, I am concerned. How long will I be sick? I am a very active person and the idea of weeks, months or years of being sick does not seem like a positive outcome.
Any thoughts?
Thanks,
Sheila (72 yrs)
Connect

Welcome to Connect, @2024fightthefight First I want to congratulate you on your bone marrow transplant (BMT) for T-PLL ( prolymphocytic leukemia). Because T-PLL is an aggressive type of mature T-cell leukemia a BMT is, at this time, the only potential cure for this disease. Not an easy journey, I know. But definitely worth the effort having a 2nd chance at life.
There are a couple of other members who also have T-PLL. I’d like to introduce you to @dominic74 and @saga2. They both have joined in a discussion here: Leukemia Diagnosis https://connect.mayoclinic.org/discussion/leukemia-diagnosis/
Since you’re new to Connect, I’d love to help you discover a few more relevant discussions. We have a lively BMT support group. Many of us have talked about our transplant stories here:
My bone marrow transplant story. Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
Another fun discussion started a few years ago is for anyone who had a transplant. Snapshots of Hope, where we encourage members to post pictures that wouldn’t be possible if not for their live changing transplant! https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
How has your recovery been? Have you experienced any graft vs host issues?