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Neurostimulator implant or Spinal Cord Stimulator

Posted by hanksgt @hanksgt, Dec 15, 2024

Has anyone use a spinal cord stimulator for neuropathy ??

Interested in more discussions like this? Go to the Neuropathy Support Group.

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amventim1 | @amventim1 | Jul 27 7:07am

I had a Spinal cord stimulator implanted a few years ago for spinal stenosis and two years ago I came down with small fiber neuropathy. I increased the intensity of the device , and it seems to help.

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Justin McClanahan, Moderator | @JustinMcClanahan | Jul 27 5:00pm
In reply to @amventim1 "I had a Spinal cord stimulator implanted a few years ago for spinal stenosis and two..." + (show)
Profile picture for amventim1 @amventim1

I had a Spinal cord stimulator implanted a few years ago for spinal stenosis and two years ago I came down with small fiber neuropathy. I increased the intensity of the device , and it seems to help.

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Hello @amventim1,

I combined your discussion with an existing discussion titled:

"Neurostimulator implant or Spinal Cord Stimulator"
- https://connect.mayoclinic.org/discussion/neurostimulator-implant-or-spinal-cord-stimulator/

Here, you can meet many members who have shared their experience with a spinal cord stimulator and you can also read through their experiences as well.

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amventim1 | @amventim1 | Jul 27 6:16pm
In reply to @vikkitennis "interesting to hear about the scar tissue, and the conflict with the SCS. I have had..." + (show)
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interesting to hear about the scar tissue, and the conflict with the SCS. I have had the Abbott Eterna for two years, and it was performing well, relieving the pain up to 2-3 months ago. I will see the neurosurgeon who implanted it next week and discuss about removing it. I have worked with the reps as well, and after 5-6 visits, they can't seem to find the sweet spot to chill the pain.

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@vikkitennis
My first device which was a Saint Jude was burned out during my right hip surgery since I did not have it in a surgical mode.I had a second one put in 2 years ago and it really doesn’t take away all the pain.When your desperate you seem to try anything.

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heisenberg34 | @heisenberg34 | 6 days ago
In reply to @amventim1 "@vikkitennis My first device which was a Saint Jude was burned out during my right hip..." + (show)
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@vikkitennis
My first device which was a Saint Jude was burned out during my right hip surgery since I did not have it in a surgical mode.I had a second one put in 2 years ago and it really doesn’t take away all the pain.When your desperate you seem to try anything.

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@amventim1 I know exactly what you mean. A few years ago I had a lot of lower back and buttock pain from a fall. I got decent relief from a cocktail of drugs prescribed by my neurologist. I got greedy and wanted more. So, I went to an orthopedic surgeon who ordered another MRI (third one) He told me I had spondylolisthesis. I got fused at L5-S1. It id nothing. I heard the now infamous words. "Failed back surgery syndrome". Wish I could go back and NOT get that surgery done. How are doing these days overall? I hope you have found something that helps.

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bini41 | @bini41 | 5 days ago
In reply to @heisenberg34 "I had a Medtronic SCS implanted back in 2018. Along with my meds it dropped my..." + (show)
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I had a Medtronic SCS implanted back in 2018. Along with my meds it dropped my pain from a 7-8 down to about a 2. Then, for some unknown reason, everything seemed to stop working. All my old pain returned. I had all the hardware removed in May of 2024. New pain doc recommended the trial of Boston Scientific's Wave Writer. They were not able to get the trial lead into the "sweet spot" due to scar tissue. Insurance will not approve permanent implant without positive result from trial. Hope this helps.

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@heisenberg34 My husband had a Medtronic stimulator suggested by his pain management doctor and had the same program. The remote they gave him was 8 years old! He had the stimulator removed and on the advice of his Neurosurgeon went with a Nervo Stimulator and has had it for over two years without incident. It gave him his life back.

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heisenberg34 | @heisenberg34 | 4 days ago
In reply to @bini41 "@heisenberg34 My husband had a Medtronic stimulator suggested by his pain management doctor and had the..." + (show)
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@heisenberg34 My husband had a Medtronic stimulator suggested by his pain management doctor and had the same program. The remote they gave him was 8 years old! He had the stimulator removed and on the advice of his Neurosurgeon went with a Nervo Stimulator and has had it for over two years without incident. It gave him his life back.

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@bini41 Good to know. No problem with scar tissue in placing new unit?
Thanks

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Mariette R. | @marietter | 4 days ago
In reply to @bini41 "@heisenberg34 My husband had a Medtronic stimulator suggested by his pain management doctor and had the..." + (show)
Profile picture for bini41 @bini41

@heisenberg34 My husband had a Medtronic stimulator suggested by his pain management doctor and had the same program. The remote they gave him was 8 years old! He had the stimulator removed and on the advice of his Neurosurgeon went with a Nervo Stimulator and has had it for over two years without incident. It gave him his life back.

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@bini41 Do you mean NEVRO ?

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datsun66 | @datsun66 | 1 day ago

Yes have one in back has not worked, looking to remove it doesn't work at all now quit about five months ago. Half the problem was they didn't seem to know how to set it up right, my opinion

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amventim1 | @amventim1 | 23 hours ago
In reply to @datsun66 "Yes have one in back has not worked, looking to remove it doesn't work at all..." + (show)
Profile picture for datsun66 @datsun66

Yes have one in back has not worked, looking to remove it doesn't work at all now quit about five months ago. Half the problem was they didn't seem to know how to set it up right, my opinion

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@datsun66
My first one died two years ago
Not that it did much to reduce my pain,but as you well know when your desperate I had a second one put in which also doesn’t do a hell of a lot either.

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heisenberg34 | @heisenberg34 | 21 hours ago

Still looking for anyone who had a SCS for a while, had it removed, and then was able to have a different one implanted.

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