1. < Neuroendocrine Tumors (NETs)
Profile picture for zacharycat

Has cabozantinib (Cabometyx) stopped working for anyone?

Posted by zacharycat @zacharycat, May 11 12:33pm

Been taking Cabozantinib for a year now, and have heard that it tends to lose effectiveness on cancer progression over time.
Take it for stage IV pancreatic insulinoma with liver metastasis. The last MRI looked good, but am having more low glucose alerts than previously. Wondered if anyone else had been taking the drug and what the next treatment would be if they had to stop?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Profile picture for zacharycat
zacharycat | @zacharycat | 5 hours ago
In reply to @tomrennie "@zacharycat I did not have any problems getting my treatment approved including temozolomide. I also don't..." + (show)
Profile picture for Turkey, Volunteer Mentor @tomrennie

@zacharycat I did not have any problems getting my treatment approved including temozolomide. I also don't recall other CAPTEM users on Connect having any issues either. If someone did, I hope that they can provide some suggestions. I would suggest filing an appeal. Sorry to hear that you are having insurance challenges. They are never fun.

Jump to this post

@tomrennie Met the pharmacist to day and it was approved. I have a $45 copay but no other problems.
The cycle is one of the meds twice a day for 14 days, with the other added once a day for the last 5. Then 14 days of no meds. Harder to remember than what i've been taking.

REPLY
Please sign in or register to post a reply.