Wow. I don’t know where to begin. I’m so sorry for all your suffering. Angry, sad , grieving my old body and who I used to be. That’s me also. HOWEVER, I’ve come a long way and you can too. When my symptoms first started, it was bad. Went from Salsa dancing (hard, physically demanding long hours average 3 times per week in my early 50’s to barely being able to walk, had to crawl on all fours up stairs (lived in a townhouse with stairs to my bedroom), the action of opening a door was not possible from the pain, couldn’t step off a curb, shower hit me like needles, nerve pain along my legs that was excruciating. I refused any mobile aid. Doctors were thinking MS. You made me realize how much better I am! Tried so many things. Acupuncture, chiropractors, supplements, supplements, supplements vitamins, pain creams, heating pad, ibuprofen, hard meditations, yoga, much faith in God, and much more. When first diagnosed I was on Amitriptyline and it worked right away although much sedating it was a godsend. It caused me a heart problem (QT longation), found accidentally in EKG done for preop for minor surgery. It went away when i stopped it. Then took Cymbalta. Also took Gabapentin for many many years. They helped but my life was changed forever. My plan was to dance tango in my 90’s, that’s how good I felt before this hit me. Over one year ago I got off Cymbalta and Gabapentin due to side effects and have been doing much better with the help of LDN (low dose naltrexone, much info on here about it). You have to find a doctor that prescribes it and you have to get it from compounding pharmacy. I’m on 6 mg and better than ever pain wise, not perfect, not cured but some of my symptoms were side affects from Cymbalta and Gabapentin and not having the medication side affects has made me better too. So I feel I shouldn’t have taken those for so long. Fatigue, insomnia, IBS, brain fog other things still there. LDN, heating pad, biofreeze and ibuprofen only when needed, maybe 2-3 times per month, that’s it. The ibuprofen really helps! I would take it everyday it works so well however of course that’s not recommended and I’m doing well enough that I don’t need it everyday anyway. But my point being ibuprofen wouldn’t have helped at the beginning and now does. Although most likely what’s helping most is the LDN. So things can get better. Everyone is different in this illness. I’m 67 now and much better but always going to miss who I used to be. There’s so much more I can say but this is already long enough. This group has much much advise on methods that help make you better. If you go back on previous posts you will find suggestions on anything that is bothering you.
You can get better too. I pray for your better health. Peace and love.