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This is so confusing. Long COVID? Parkinson's?
My husband (74) was having dizziness & balance issues, brain fog, and crushing fatigue and then after quite some time, a mild tremor in his fingers when he held his arm out, so his doctor sent him to a movement disorders neurologist. They seem to think it's Parkinsons but his a-synuclein test was negative (he didn't have a DaT scan), his tremor is not a resting tremor that is typical of PD. And I don't think the fatigue is typical? That was his first symptom. He'll sleep 12 hours at night and take 1-2 one hour+ naps a day! Even putting him on Amantadine didn't help with the fatigue. He wonders if he could have Long Covid. Or maybe there are multiple issues going on. He does have sleep apnea but is being treated for that.
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@truwomandi
Can you describe your symptoms more? They may seem minor, but they paint a whole picture. I am not a doctor, but I don't accept they have no idea. I only know PD, since that is what I have. Do you think you have PD?
@truwomandi If you can do clogging, DO IT! I think that is great. I am stubborn as well, and I do what I can when I feel like it. Some people have LC go away. I have not had that experience, although I will say that I am not as sick every day as I was 3 years ago. I am not sure if that is due to the help of medications or if I am adapting to some of this mess. I know that today I feel terrible. I went to my internship two days in a row. I can't usually do that, but I am at the end of the semester (online grad program), I slept 10 hours last night and even my dreams were unpleasant. I woke up with that poisoned feeling malaise, loud tinnitus, stomach pain, joint pain and just overall shitty. I am grateful I can stay home today and rest. Thank you for your response as well. Keep me posted. I would love to hear how you are.
@diverdown1 Always something new - What is LC? Also, have had tinnitus all my life and hate waking up to heavy metal in my ear! Any tips?
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1 ReactionI do have Long Covid and am wondering when he had Covid? My symptoms began about 10 days after I contracted the virus and on day 2 and I lost my taste and smell and still don’t have that back almost 4 years later! I also had body tremors, stuttering, brain fog, balance issues, bad headaches (which I still get), memory loss, all of which are pretty much gone. I had 7 Stellate Ganglion Block injections into my Parasympathetic Nerves in my neck and the 7th one finally took my tremors away. I would recommend that your husband see a Functional Medicine Doctor and get on some good supplements, ones without fillers. Wishing your husband all the best.
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2 Reactions@goatgirl28 LC is an abbreviation for Long COVID. The tinnitus I have didn't begin until I got sick with this, what I consider and autoimmune illness. If I have inflammation, it is louder. I remember having my ears ring from rock concerts back in the late 80's, but this is a different thing. I do not have any tips unfortunately. My dad had tinnitus, but it was from shooting weapons with no ear protection.
@goatgirl28 LC is an abbreviation for Long Covid.
My husband (67) also has these same symptoms. Fatigue is horrible, brain fog is horrible. He has had other LC symptoms improve but these two have hung on for almost 4 years. We’ve been to so many doctors without a diagnosis. Tests are normal they say. Has not done the neurology psych test for dementia yet. Has been to two different neurologist visits but they didn’t think he had Parkinson’s. Finally have two appointments for long COVID doctors but not until end of September. Waiting for Mayo neurology movement specialist dept to set up appt for second opinion on whether he has Parkinson or maybe Lewy Body. What ever he has it’s not good. So very difficult to function on a daily basis. He tries to do things every day to keep moving but wow the fatigue sets in then brain fog. I’m having a hard time staying positive at this point and so is he. Life has drastically changed for us which makes me so sad.
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1 Reaction@bentstiks2
Your husband’s story is SO characteristic of so many other of us! I have done Mayo’s LC program as well as UCSF , Stanford Hospital, & Sutter Health… each has had benefits but not dramatic. Definitely a Mediterranean diet addresses the GI contributory factors, which are very important, but while he awaits his Mayo appointment, here are some things to consider/try:
HBOT ( hyperbaric chamber therapy) can be dramatically helpful with the fatigue & brain fog, by increasing the oxygen delivery to brain & body. Co enzyme Q along with Urolethesin-A ( Time-Line) can benefit the mitochondrial health which provides energy to the tissues. Nattokinase ( online Swanson Labs) helps bind the spike proteins from the LC embedded viruses, as does the blood filtration called Extracorporal Blood Oxygenization and ozonification ( EBOO), which helps filter-out these blood born inflammatory factors. Scottsdale and Mayo-Scottsdale area offers you a number of Integrative Physians and therapeutic facilities which are very focused upon these new, breakthrough approaches to LC… I wish you and your husband best wishes and above all DO NOT loose hope AND be persistent 💫👍
@peterson1355
I would think the other Mayo Clinics then too?