Prolia

Posted by sue417 @sue417, Jul 27 6:33pm

Hi
I would like to hear from people that have been on prolia a long-term and how it's helped.
I have been on reclast for 4 years I have three fractures in my spine one is 3 years old the other two or two years old I recently woke up with severe back pain and all three vertebrae have collapsed farther I'm really upset. So with my health issues the only medication that I'm able to do now is prolia the injections twice a year I really would like to find out what people have done and how they feel on it

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Michael Lavacot | @michaellavacot | Jul 30 10:26am

In reply to @momo03 "@michaellavacot What do you mean by adequate calcium? I'll start it in a couple of weeks." + (show)

@momo03 - Since Prolia is very effective at stopping your bones from giving up calcium, if you don't get enough calcium in your diet, the calcium in your blood will go low and then you can get all kinds of side effects. I put together a training on Prolia that I recommend you watch. It give some of the ins and out of Prolia based on what I have learned over the last 3 years.

Please note that I am not a licensed medical professional, and the information presented in the video is for general educational purposes only. The content is shared based on my research and understanding as a patient living with osteoporosis. It is essential to consult a qualified healthcare provider for personal medical advice.

Michael Lavacot | @michaellavacot | Jul 30 10:33am

In reply to @sue417 "@michaellavacot Hi So would the endocrinologist not do that put me on a calcium I know..." + (show)

@sue417 - Your endocrinologist will likely tell you in passing to make sure you take calcium. Hopefully they stress the importance. Since Prolia is very effective at stopping your bones from giving up calcium, if you don't get enough calcium in your diet, the calcium in your blood will go low and then you can get all kinds of side effects. I put together a training on Prolia that I recommend you watch. It give some of the ins and out of Prolia based on what I have learned over the last 3 years.

momo03 | @momo03 | Jul 30 11:17am

In reply to @heisenberg34 "@momo03 I hope you can tolerate the drug well. My wife has not had any bad..." + (show)

@heisenberg34 Thank you!

suzij | @suzij | 6 days ago

I was prescribed Prolia about 6 -7 years ago — first prescription to treat osteoarthritis. The improvement in bone was considerable until the last scan this spring when it leveled. Searching for a replacement is the same circle of issues with side effects associated with options. Have you had jaw bone issues with Reclast?

sue417 | @sue417 | 6 days ago

In reply to @suzij "I was prescribed Prolia about 6 -7 years ago — first prescription to treat osteoarthritis. The..." + (show)

@suzij
Hi
I have had no issues with my jaw from reclast

suzij | @suzij | 6 days ago

In reply to @sue417 "@suzij Hi I have had no issues with my jaw from reclast" + (show)

@sue417 That is good news! That can be a side effect. Prolia may be beneficial.

sue417 | @sue417 | 6 days ago

In reply to @suzij "@sue417 That is good news! That can be a side effect. Prolia may be beneficial." + (show)

@suzij
Hi
Look up for the other there's a gentleman on here that put a really good information on video

ga29 | @ga29 | 6 days ago

In reply to @sue417 "@suzij Hi Look up for the other there's a gentleman on here that put a really..." + (show)

@sue417 a little story for those who are looking into these injections. I hope this helps.
I’ve had one injection of Prolia so far.
I was diagnosed with osteopenia a few years ago. I recently had a fractured sacrum, due to steroids prescribed for an autoimmune arthritis I am dealing with this year.
I can’t take Evinity, because I have a-fib and had a TIA last year ; they said it could cause a stroke.
So many side effects from all these health conditions as we age!
I feel my PMR (the arthritis autoimmune disease), may be stress related, it was precipitated by my two cervical fusions last year. Two, because the first one failed.
So even though I have osteopenia, the standard treatment for PMR is prednisolone. That treatment caused my sacrum to fracture in two places; there was no fall, just by walking around for an afternoon, enjoying watching our grandchildren play soccer., then driving home- we live two hours away. Sorry to vent, but I do want to warn others how important it can be to be proactive with our health care. If getting this injection every six months prevents me from having another fracture in my spine I am all for it.
I haven’t noticed any side effects from the first injection. I will post again on any changes. All the best to everyone who is going through similar issues!
I have Medicare plus plan G so my cost for injections is covered, it is same as plan F (no longer available) except we have an annual deductible.