Anyone had treatment with mitomycin (Zusduri)?

I completed my 6 week cycle of Zusduri. I had very few side effects except for slight pain when urinating week 5 and 6. I previously had 27 gemcitabine treatments and the Zusduri instillations were way easier than they were. I am sorry to hear that you are experiencing pain with treatment. Waiting for my cystoscopy on May 7th with fingers crossed that it did the job.

I completed my 6 week cycle of Zusduri. I had very few side effects except for slight pain when urinating week 5 and 6. I previously had 27 gemcitabine treatments and the Zusduri instillations were way easier than they were. I am sorry to hear that you are experiencing pain with treatment. Waiting for my cystoscopy on May 7th with fingers crossed that it did the job.

@cynthphelps How did your cysto go? My husband is to start on it July 31. Hes had BCG, Gem Doc, a trial drug and now this. I haven’t shown him the comments anout the pain folks are describing. Hop e the results are worth it and hope you had a good report.

@ljashton My 3 month cysto was clear, have another end of September. So, side effects were not pleasant to say the least, but if it works, was worth it. Best to your husband.

Hello @fighting50 and welcome to Mayo Connect. No experience with Mitomycin here, as it was not yet approved for bladder cancer when my husband's urologist wanted to try it. The doctor was eager to use it and see positive results, but my husband's cancer was highly aggressive and initially muscle invasive, though the later recurrences were not. It looks like it has good percentages of success in intermediate to low grade BC. I understand that it is similar to BCG in side effects. Good luck with it and I hope you get some feedback here from others who have experience with it.

@sepdvm
Are there any comments regarding Mitomycin for June or July? It’s such a new drug- would like to get more descriptions of side effects. Thank you.

@cynthphelps How did your cysto go? My husband is to start on it July 31. Hes had BCG, Gem Doc, a trial drug and now this. I haven’t shown him the comments anout the pain folks are describing. Hop e the results are worth it and hope you had a good report.