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PRRT Treatment: What to expect?

Posted by rkklinger @rkklinger, May 29 10:35am

My husband is having PRRT with Lutathera on Tuesday. After reading the information sent from Mayo, he is a little concerned about side effects. What should we expect after the treatment Tuesday afternoon? Are there immediate side effects? Any thoughts will be appreciated.

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mmar2025 | @mmar2025 | 2 days ago
In reply to @rkklinger "Ron's 1st PRRT was on June 4. He is starting to lose his hair. I haven't..." + (show)
Profile picture for rkklinger @rkklinger

Ron's 1st PRRT was on June 4. He is starting to lose his hair. I haven't seen hair loss as a side effect. Has anyone experienced it? May God bless you all -- this is a tough journey.

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@rkklinger Yes. I do believe hair loss is a side effect. Although I didn't have a lot of hair to begin with it has certainly thinned out since treatments began. I will be having the last PRRT treatment in two days. I am hoping as my body begins to recover that the hair will grow back somewhat.

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sophiarose | @sophiarose | 19 hours ago
In reply to @rkklinger "@rhb18 We appreciate your comments as Ron goes for his 2nd PRRT treatment on Augustt 3...." + (show)
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@rhb18 We appreciate your comments as Ron goes for his 2nd PRRT treatment on Augustt 3. So far, the main side effect has been fatigue. We're praying that will continue after the 2nd treatment. We are wondering if you had a PET scan at any point to see if it is working.

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@rkklinger
According to my oncologist a lot of times the tumors get inflamed and the inflammation can make it look like the PRRT isn’t working when it really is
He did a mri and a Pet scan 3 months after my last treatment
Best wishes

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rkklinger | @rkklinger | 18 hours ago
In reply to @sophiarose "@rkklinger According to my oncologist a lot of times the tumors get inflamed and the inflammation..." + (show)
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@rkklinger
According to my oncologist a lot of times the tumors get inflamed and the inflammation can make it look like the PRRT isn’t working when it really is
He did a mri and a Pet scan 3 months after my last treatment
Best wishes

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@sophiarose Did you stabilize or see a decrease in tumors?

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sophiarose | @sophiarose | 7 hours ago

I was stable for 18 months and did have some decrease in tumor size
My last MRI a few weeks ago showed I am no longer stable
I am scheduled for another right side liver bland embolization hopefully to relieve the pain I have been in during for awhile if that works I will do 2 more rounds of PRRT if not I will get my left side done and then do PRRT
Good luck!
Best wishes

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2 replies
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Turkey, Volunteer Mentor | @tomrennie | 7 hours ago
In reply to @sophiarose "I was stable for 18 months and did have some decrease in tumor size My last..." + (show)
Profile picture for sophiarose @sophiarose

I was stable for 18 months and did have some decrease in tumor size
My last MRI a few weeks ago showed I am no longer stable
I am scheduled for another right side liver bland embolization hopefully to relieve the pain I have been in during for awhile if that works I will do 2 more rounds of PRRT if not I will get my left side done and then do PRRT
Good luck!
Best wishes

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@sophiarose Good luck with the new treatments. When do you start?

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1 reply
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Teresa, Volunteer Mentor | @hopeful33250 | 5 hours ago
In reply to @sophiarose "I was stable for 18 months and did have some decrease in tumor size My last..." + (show)
Profile picture for sophiarose @sophiarose

I was stable for 18 months and did have some decrease in tumor size
My last MRI a few weeks ago showed I am no longer stable
I am scheduled for another right side liver bland embolization hopefully to relieve the pain I have been in during for awhile if that works I will do 2 more rounds of PRRT if not I will get my left side done and then do PRRT
Good luck!
Best wishes

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@sophiarose
Wishing you all the best! Will you posts updates?

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sophiarose | @sophiarose | 2 hours ago

Yes I will
Thank you for your well wishes

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sophiarose | @sophiarose | 2 hours ago
In reply to @tomrennie "@sophiarose Good luck with the new treatments. When do you start?" + (show)
Profile picture for Turkey, Volunteer Mentor @tomrennie

@sophiarose Good luck with the new treatments. When do you start?

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@tomrennie
My right side bland embolization is scheduled for 8/11 if that relieves the pain I will start 2 rounds PRRT if it doesn’t they will do a left side embolization and then start PRRT
With all hope I should get about a year of stability and maybe that that point there will be something else approved
Thank you

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