How long does post concussion head pain and cognitive fatigue last?

Hello and happy new year everyone,

I was rear ended twice in the last three years and I am really struggling the second time with the TBI, post concussion syndrome and the returning to gradual activity. First does anyone have any experience with how long the head pain lasts with activity or cognitive fatigue? I found taking breaks every time the head pain worsens helps but it’s so frustrating as it’s painful and takes forever to do anything. Thank God that all the MRI’s and CT scans were good but I am seven months post accident and just wondering if any has experienced anything similar and has some insights. Still struggling with the memory, brain fog, cognitive fatigue, confusion and multitasking is next to impossible which doesn’t help as my career requires all of those things. My speech pathologist is optimistic and just wanted to know what is everyone else’s experienced opinions.

Thank you so much everyone and I hope you are all doing well and are having a blessed new year so far.

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Profile picture for jenniferctbisurvivor @jenniferctbisurvivor

@nanacate

You are doing great, been there with you! I keep hearing the same things too, rest, rest and more rest. I take short cognitive naps, about half hour, really helped in my circumstances but my speech pathologist says it takes time and it’s a gradual slow recovery that can be set back. I would definitely keep your speech pathologist and the neurologist in the know, so they can help you heal. Three TBI’s is a lot and you might ask them about your progress and how you are doing. I ask mine all the time so we can change and adjust the exercises, rest, activities ect. according to my fatigue levels. I had to sleep a lot in between to recover from the cognitive fatigue and sometimes still do, boring but it works.

You have got this, I will be thinking about you snd praying for you.

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Hi, Jennifer, what a wonderful, encouraging reply. It seems I need to be reminded over and over again about the importance of NAPS and patience. I feel encouraged when I'm reminded of these things.
Best, Cate

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I had the same things too, couldn’t even remember where I was going running errands, would get two or three blocks from home and forget. Used navigation and every tool possible to prevent me from thinking more than necessary to prevent excessive cognitive fatigue. Take short naps, even half hour when the brain decides it’s done processing, huge help. The headaches turned out to be eye convergence insufficiency-basically got hit so hard that it knocked my eyes out of alignment-neuropathologist prescribed specific PT exercises forever, but it helps the headaches turned pain enormously. Been in speech pathology physical therapy for about ten months and it helps with the jumbled thoughts, ford finding, building a new neuropathways and the aphasia. Don’t push yourself too hard or get stressed can cause additional issues but I would definitely do research and talk to your doctor about all kinds of Physical Therapy it helps a lot.
Hope you feel better soon, I found that the 24 hour fitness has a recovery room with massage chairs, the pool and jacuzzi seriously have been a life saver with the physical pain. Yes, I am working too and like you, couldn’t believe it, couldn’t think back then and my job required extensive cognitive fatiguing everything, but after a very long 13 months of hard work and persistence I am just now starting to feel better and more like my happy self again. I know my limitations and won’t let anyone push my body so far it hurts me though. I went from doing 200% to 100% and that’s okay!!

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Profile picture for kayabbott @kayabbott

My moderate TBI was 32 years ago. My headache only lasted a week so best to check with a neurologist on ways to manage that. I was working and writing my PhD dissertation at the time, so recovery was my year from hell (1.5 years to get to 90%). Pacing onself and napping so you don't hit the extreme fatigue is important. If you have an office, close the door and take a short nap. Good that you are in speech therapy. The brain does rewire, but it takes a long time and is a bit like a staircase with steps up, plateaus, and then down as the brain heals. Single focus is important while healing; break jobs into easier pieces rather than trying to multitask. I still do crosswords, suduko, and other games and I keep learning (my version of the brain as a muscle). Stress is very hard, and difficult to avoid, but find whatever escapes that you can. Let us know how you are doing and your healing progresses.

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@kayabbott I have a history of concussions (student athlete) and my most recent concussion was this past January after a fall, I am also currently writing my PhD dissertation (in neuroscience of all things) and it has been very difficult with the lasting symptoms from the injury that still have not resolved. Your reply with your experience gives me hope that I can complete writing my dissertation while still recovering. It sounds like we both made finishing a PhD even more of an extreme sport than it already is!

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I’m a writer also. Much to my dismay I’ve had to stop most resource writing for publication as I’m finding much trouble meeting deadlines. I’m proud of you working on PHds. Perhaps persistence will pay off for you! Good luck and best wishes.

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Profile picture for kaylad @kaylad

@kayabbott I have a history of concussions (student athlete) and my most recent concussion was this past January after a fall, I am also currently writing my PhD dissertation (in neuroscience of all things) and it has been very difficult with the lasting symptoms from the injury that still have not resolved. Your reply with your experience gives me hope that I can complete writing my dissertation while still recovering. It sounds like we both made finishing a PhD even more of an extreme sport than it already is!

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@kaylad Dissertations are tough enough without TBIs. I broke my writing down as much as possible by using and populating outlines, and lots of naps, managing stress, exercise, and other escapes. If noise impacts you, noise cancelling earbuds are great. Once you are done, you will have the PhD plus considerable knowledge and experience in rewiring brains. I beat myself up throughout the writing and defence; walking across the stage for my silver diploma was an epithany. It felt like floating because I didn't realize how much I was beating myself up for struggling. PhDs are accomplishments, especially during recoveries. Please give yourself a hug for me.

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Profile picture for kaylad @kaylad

@kayabbott I have a history of concussions (student athlete) and my most recent concussion was this past January after a fall, I am also currently writing my PhD dissertation (in neuroscience of all things) and it has been very difficult with the lasting symptoms from the injury that still have not resolved. Your reply with your experience gives me hope that I can complete writing my dissertation while still recovering. It sounds like we both made finishing a PhD even more of an extreme sport than it already is!

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@kaylad - I agree - writing a dissertation is a huge accomplishment and a big task to complete. I also agree with @kayabbott about proactively taking naps, managing stress, exercise, and other escapes. When I was writing my master's thesis (not as big as a dissertation, of course, but a similar process), I did a lot of these to just incent myself and try to keep going. My biggest "reward" at that time was spending an hour a day just reading a novel for fun.

Is fatigue your biggest challenge as far as symptoms right now, kaylad, or something else?

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Profile picture for ccmedic5 @ccmedic5

@ccmedic5 just an update, I am now on Ajovy, nortriptyline, taking my busbar and my zoloft. I have to get a blood test that is new and see if it shows up as early dementia. I have learned to stop when I feel an outburst coming and I try to direction it and ask myself is there a reason Im this angry, it happened on the 5th, I was sitting alone and became pissed off for absolutely ne reason. I sat for 15 min alone and was just getting angrier. Wife came home and I yelled at her and she aske what was wrong and I told her and she was asking more questions and I answered her and I told her to just give me a bit to figure this out. I did and felt better. The small headache is still there, the hand shaking is stronger then before. I did go see my neurologist and she said we are going to do a sleep study for Sleep Apnea, we are also send me to an ENT to see about the dizziness and the nausea, MRI did show air in the mastoid bone in the ear.So hope everybody is feeling better it takes time. I have to keep my mind open yet till we do these other tests and see if it gets better, Neuro told me that it could still be CTE but no test or cure anyway so we treat symptoms.

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@ccmedic5 update!!! I had a small and not very alarming episode about two weeks ago, I lost control of my right hand, my left hand and I was slurring my speech. I didn’t panic because strokes or TIA don’t work like that. I could not control anything. I sat down and relaxed in about 20 min it seemed to pop right back up and no other issues. I am a full believer that I have CTE. I am looking to be part of a research team that wants to track me and see if there is information there that can be useful to them.

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My TBI pain is compounded by post cancer sinus radiation. Fighting trigger points in my neck constantly, and I know wanting the left side of my head removed isn’t a healthy answer. BUT the pain will be forever and even though I know what triggers spikes, most I cannot avoid. Although I want so much (age 72) to still be out among people, volunteering my equine assisted work and other areas, I have to learn and accept that the work I’ve done has helped many and even tiny amounts of participation can leave me regretting my input pain wise. I do offer my pain as prayer. (Doesn’t make the pain go away but at least it goes to a good cause) and I accept that the rest of my life will involve Rx medications just to get through a day or even attend Church. I also have to accept some triggers I just cannot engage in, like travel. Basically, after all the research, shots, PT, specialists etc….. most of our TBI and post rad pain is life long. Rest is a must. More than most realize. Being active is wonderful also. FIBRO used to rule my life 30 years ago and now not as bad. When I feel it coming on, I engage in a pleasurable activity; keep moving! However, even with a long list of things to lessen it ( ice, heat, manipulation etc) my head/neck pain is relentless and unfortunately our bodies and minds will require increases in meds. This is our duty to ourselves: take the meds that work with the least side effects. Be validated it is necessary, even though we hate our meds and wish we could never go to a pharmacy again, like a diabetic on insulin, our pain meds are a necessity. Kick out self pity. Try not to feel shy and guilty about this. It can actually be life saving.

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