Dietician said only stay hydrated with Stage 3b CKD....no other diet

Posted by kayabbott @kayabbott, Dec 18, 2025

Frustrating, my eGFR is 32, but the renal dietician said I only need to drink enough water, no other dietary changes (mostly pescaterian now). A year ago when my eGFR was 52 the nephrologist said just hydrate. I asked her if there are any books or charts that help with a stage 3b diet, and she dismissed that. I don't have diabetes, high BP, or heart disease and am on Jardiance because I don't tolerate meds. They tend to be reactive rather than proactive, treat it rather than slow the decline. Have your had the "don't worry about it" dismissive "advice"?

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Profile picture for kayabbott @kayabbott

@happyquilter I cook because I have to; with celiac disease I turn into the Pillsbury dough boy if I eat a crumb of gluten. There are few restaurants that are safe with my diet restrictions. Unfortunately, our afflictions tend to isolate us from others who don't understand. Not having friends and family to confide in can contribute to lethargy and hopelessness. I work at breaking out of the cycle with hobbies and other interests. I can't do much aerobic exercise with the CKD, except in pieces, but I can lift weights. It was somwhat life changing to get a good personal trainer at my rec center, giving me something to improve in my life, to combat the fear of downward spirals. Even taking walks helps.

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@kayabbott Good for you. Taking walks is out for me. Bad hip surgery from improperly sized implant causes me to limp, bad hip and back pain. Great doctor really messed me up with tilted pelvis and spine issues. If it's not ine thing, it's another. Hip, back, stomach, kidneys and early onset Alzheimers disease, blood pressure and heart. What's next? Shouldn't even be existing.

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Reading these various comments I feel less alone and sorry for the rough time some are having..it's not easy...I am ckd stage 3b and I got fedup with the casual attitude of some medical people(was told once "oh don't worry lots of people live on one kidney" I was very pissed off ...so this is what I did...I took my deceased husband's Merk Manual and took the diabetic diet and cross referenced it with the kidney diet and eliminated all the foods which were bad in both....and rather than measuring a bit of this that on questionable foods I eliminated them totally. (no potatoes, tomatoes, avocados etc) focus on allowable salads or vegts. I find that finely chopped celery replaces salt taste...without sugar you can taste the sweetness in lettuce. 12oz allowable protein a week, divided by 3days = 4oz servings on a meat day ...spices help a lot....water down coffee to 16oz and add 1 tbs 35% cream..no sugar. So that was 2020 and so far so good? Also have my blood tested every 3mos. To keep track...My sympathy for people alone and trying to cook. I don't like bothering to cook either...So my son preps ahead time sliced up salad vegts in water for me like they do in restaurants and that makes my meal making much easier...which gives me more time to paint(where I can pour all my anger energy into creating) I hope this helps some people...it is terrible to feel alone and hopeless.

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I posted the earlier comment regarding chia seeds and quinoa. Just a follow-up. Chia seeds are quite tasteless, but they are a good source of protein and fiber. I shop at Aldi and Walmart - both stores have Chia seeds. A bag of the little seeds lasts about 6 weeks, eating them once a day. 2 Tablespoons, soaked in milk for about 10 minutes, then adding it to my oatmeal or cereal works fine. You can make a sort of Tapioca custard with them. I've also added them to fresh berries - a smoothie type of refreshing drink. Quinoa is also a good source of protein and fiber. We often eat our homemade version of sweet and sour chicken with rice. I add Quinoa to the rice - Jasmine rice is my preference. I don't use the minute rice. Lentils was another thing I had never eaten in my life. I don't eat them often, but when I make homemade chicken noodle soup, I add the red lentils to it. It turns it into a creamy style soup with a slightly smoky flavor - not overpowering. It's very tasty. I love baked beans, but agree canned varieties are too full of sodium. I've tracked down some low sodium homemade recipes that are very tasty. I use a pressure cooker to speed the cooking time up for the raw beans. If cooking is NOT something you like to do, most of this can be done with little effort. The baked beans take more time, but the others add only a couple of minutes of effort. They are also quite inexpensive. I'm 68, soon to be 69. I find most of these changes are easy to do.

My parents basically ate a meat and potatoes diet, vegetables were corn mostly, peas and green beans on occasion, carrots & sweet potatoes less often. They didn't try eating pizza until they were in their 60s. We never had spaghetti. Beef and chicken were part of our daily diet. Pork chops - nope, didn't eat those until I was married. We did have ham during the holidays. Turkey too. In the summer, it was homemade potato salad every weekend. Eating fish was a rare event. Except for lutefisk at Thanksgiving and Christmas. Sorry, not a fan of it. I can't say their diet was wrong, they lived into their 90s. I do believe my dad had kidney disease, but was never told, his outward symptoms certainly matched mine. Fruit was available in the form of bananas, oranges and grapefruit. Summer we had strawberries and peaches. So, my food horizon has expanded in several ways compared to my diet years ago. Will it help slow my kidney decline? I certainly hope it does, but we've all seen how science changes directions. What was good for you, becomes bad for you and vice-versa. I can only wish good health to each of you.

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Profile picture for happyquilter @happyquilter

@gingerw You said a mouth full. Getting help or guidance for a kidney disease diet is like trying to catch a wild horse while on foot. My dietitian is really
zero help. She actually knows nothing about kidney disease and even said so. It's up to us to teach ourselves if we want to try to avoid dialysis. But, it is what it is. My doctor now has me on a "remote" blood pressure machine. Didn't give me a real explanation but it's what I need to do every morning when I first get up.

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@happyquilter There are several sources for helping you find information about a good diet plan for renal disease. rsnhope.org has a good section on recipes and guidelines. As does the National Kidney Foundation.

What worked for me was to fix things in batches, and do left overs in a creative way. I tend to eat to live, not live to eat, but know that taking precautions and tailoring my food plan is the best path for me. Many of us here also need to sleeve in a combination of diet plans, renal plus diabetic, or cardiac. For me, my plan has now morphed into renal plus gout plus cardiac. Am I thrilled with this? No. Am I challenging myself to make the best of it? Absolutely.
Ginger

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Profile picture for mah7925 @mah7925

I won’t know how I’m doing until my next blood draw.

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@mah7925 doing good my creatinine is stable at 1.5!

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Look for another nephrologist!

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