Has anyone had serotonin syndrome? Treatment and outcome?

Posted by WILKINS905 @wilkins905, Jul 22, 2012

Has anyone been thru an experince with this from a bad mix of drugs and if so what was the final outcome and what type of treatment was given

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

Profile picture for Barb @amberpep

I thought serotonin syndrome was when we had been taking too much serotonin. Am I wrong?
Barb

Jump to this post

That's great news glad that it showed negative. Will be interesting to see what the dr has to say Kepp in touch and take care Piglit

REPLY
Profile picture for Barb @amberpep

I thought serotonin syndrome was when we had been taking too much serotonin. Am I wrong?
Barb

Jump to this post

I don't really know......but if it says re uptake I wonder

REPLY
Profile picture for Conniebug @conniebug

Yes, I have. I had been on Cymbalta 120 mg which is a very high dosage, but it was winderful for my fibromyalgia. I was also on sleep meds like Ambien, Klonopin and Zanzflex. My docs here think that when I had a neck blocjk the steriolds oin it made the Serotonin Syndrome Happen. Sorry about the spelling, as I cant get the backsoace to work and my brain is still in a mess....only beemn 5 weeks since diagnoisis and complete change of meds!

Jump to this post

checking in with you to see if you are doing better..I sure hope so......I am just going along about the same ......did you have an experience with Tinnitus(ringing in the ears) from the cymbalta.......I am trying to survey a few people that may have had that happen to them......this is one of the things I am going thru and it is not good..I will keep you in my prayers that you get better and hope you have recovered already

REPLY
Profile picture for Conniebug @conniebug

Yes, I have. I had been on Cymbalta 120 mg which is a very high dosage, but it was winderful for my fibromyalgia. I was also on sleep meds like Ambien, Klonopin and Zanzflex. My docs here think that when I had a neck blocjk the steriolds oin it made the Serotonin Syndrome Happen. Sorry about the spelling, as I cant get the backsoace to work and my brain is still in a mess....only beemn 5 weeks since diagnoisis and complete change of meds!

Jump to this post

Hope you are feeling better,,,,,,,,,I am still fighting the battle...had one good day last sunday..trying to phase out the cymblata,,,this is tuff stuff....I am not sure I will be able to get off of it...even when on it it does not seem to help at this point...going to call my doctor today...wish you some better days

REPLY

This is my third time of going through this horrible syndrome. I have multiple docs and meds and once again one prescribed something (over the counter) that has made me sick for over two weeks. The latest one was a doc suggested I take some cough medicine after I had sent him a message on his portal. He had a list of my meds, but still told me to take this one, MucinexDM, that put me over the top. I am not the doctor or pharmacist. Why can't they get this right? I am upset he did this. I am physically and mentally miserable! Has anyone here got any suggestions in dealing with multiple docs and meds to prevent this?

REPLY
Profile picture for cathy~ @cathyh

This is my third time of going through this horrible syndrome. I have multiple docs and meds and once again one prescribed something (over the counter) that has made me sick for over two weeks. The latest one was a doc suggested I take some cough medicine after I had sent him a message on his portal. He had a list of my meds, but still told me to take this one, MucinexDM, that put me over the top. I am not the doctor or pharmacist. Why can't they get this right? I am upset he did this. I am physically and mentally miserable! Has anyone here got any suggestions in dealing with multiple docs and meds to prevent this?

Jump to this post

Oh, my. I totally understand as I'm going through something similar right now and it is so frustrating. I feel as if no one LISTENS! First, I would review your meds with your primary care physician and get his input as how to proceed. You haven't mentioned what type doctors/specialists you are seeing, but perhaps these visits can be purged and consolidated by going to just two or three docs who can handle your maladies. Also, I have found that you cannot be timid - which took me a long time to overcome - you must state your problem with the respective doctor. If he/she doesn't "get it" then it's time to move on. I know this is very hard but I had to persevere for over a year with various maladies going from specialist to specialist and was becoming despondent until one finally told me to keep searching and not let "them" tell you you're a "hypochondrial pre-menopausal woman". He was right. I finally found out I had Lyme Disease. Good luck.

REPLY
Profile picture for shoregal45 @shoregal45

Oh, my. I totally understand as I'm going through something similar right now and it is so frustrating. I feel as if no one LISTENS! First, I would review your meds with your primary care physician and get his input as how to proceed. You haven't mentioned what type doctors/specialists you are seeing, but perhaps these visits can be purged and consolidated by going to just two or three docs who can handle your maladies. Also, I have found that you cannot be timid - which took me a long time to overcome - you must state your problem with the respective doctor. If he/she doesn't "get it" then it's time to move on. I know this is very hard but I had to persevere for over a year with various maladies going from specialist to specialist and was becoming despondent until one finally told me to keep searching and not let "them" tell you you're a "hypochondrial pre-menopausal woman". He was right. I finally found out I had Lyme Disease. Good luck.

Jump to this post

I had Serotonin Syndrome in 2008. I had not even heard of such a thing.
Lyme Disease is an awful thing. I had this horrid disease in 1983 and little was known about it. I tried to tell them and displayed the bite on my leg-and was told no one had ever reported such in the area I lived. I was put in isolation and that whole experience was a nightmare.
When my immune system is weak the Lyme kicks back in as well. I did not know that it can remain in the body. I was released from the hospital w/ a fever of 103 because of no insurance. Also found out I was pregnant w/ my 2nd child at that time. He was born healthy.
I am fortunate to still be alive. Not being the least bit dramatic when I say such.

REPLY
Profile picture for cathy~ @cathyh

This is my third time of going through this horrible syndrome. I have multiple docs and meds and once again one prescribed something (over the counter) that has made me sick for over two weeks. The latest one was a doc suggested I take some cough medicine after I had sent him a message on his portal. He had a list of my meds, but still told me to take this one, MucinexDM, that put me over the top. I am not the doctor or pharmacist. Why can't they get this right? I am upset he did this. I am physically and mentally miserable! Has anyone here got any suggestions in dealing with multiple docs and meds to prevent this?

Jump to this post

Hey @shoregal45 and @parus

I too suffered from Serotonin Syndrome.
from using Cymbslta fir tyr first time

REPLY
Profile picture for cathy~ @cathyh

This is my third time of going through this horrible syndrome. I have multiple docs and meds and once again one prescribed something (over the counter) that has made me sick for over two weeks. The latest one was a doc suggested I take some cough medicine after I had sent him a message on his portal. He had a list of my meds, but still told me to take this one, MucinexDM, that put me over the top. I am not the doctor or pharmacist. Why can't they get this right? I am upset he did this. I am physically and mentally miserable! Has anyone here got any suggestions in dealing with multiple docs and meds to prevent this?

Jump to this post

But I also blame myself because I generally go to DRUGS.com t compare all interactions whether by other meds or foods. I was already taking Zofran for gastroparesis which when these two meet it is NOT GOOD! I went to the ER, called the Dr who prescribed it, spent the next 5 days sick as it took awhile to not have symptoms. It can take weeks to get out of your system
The Dr who prescribed it had the Medical info on me and knew I was taking Zofran, so I tell you, we have to be our own advocate. Usually i check before I start a new med, too! So always put into drugs com

REPLY
Profile picture for cathy~ @cathyh

This is my third time of going through this horrible syndrome. I have multiple docs and meds and once again one prescribed something (over the counter) that has made me sick for over two weeks. The latest one was a doc suggested I take some cough medicine after I had sent him a message on his portal. He had a list of my meds, but still told me to take this one, MucinexDM, that put me over the top. I am not the doctor or pharmacist. Why can't they get this right? I am upset he did this. I am physically and mentally miserable! Has anyone here got any suggestions in dealing with multiple docs and meds to prevent this?

Jump to this post

I am currently taking BuSpar 10 mg for anxiety. I take it in the morning after breakfast (which is usually around 8:30 - 9:00). I am also taking 1-1/2 mg of Klonopin and 200 mg of L-theanine for sleep at bedtime (around 10:30). Could these medications cause seratonin syndrome? I'm so afraid I will get this or have it now. My psychiatrist disagree. But I find myself super sensitive to outside events, sickness of those people I know, deaths of those I know and even movies that are somewhat violent. Does anyone here have any suggestions?

REPLY
Please sign in or register to post a reply.