Severe nerve pain in the C2 and C3 area of your neck

Posted by eddieboy143 @eddieboy143, Jul 9 11:18pm

Is anyone having any success in dealing with occipital nerve pain in the C2, C3 area of your neck? If so, I would like to know what you are taking for pain and is it working. Thank you for your input!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

5mg methadone at night worked for me. I felt oversedated first couple of weeks, but all good now.

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For anyone who still suffers from spinal pain, please discuss LDN with your doctor. It's off label, requires a compounding pharmacy and is not covered by insurance, but I just paid $110 for a 90 day supply at a local compounding pharmacy. An online compounding pharmacy would have been only about $75 but I didn't get a new prescription in time for that. There's several ongoing studies looking at new usage. I have severe cervical spine issues, PMR and I was recently diagnosed with SMM. I'm using LDN with my prednisone tapering.

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I’m on a 3 day fentanyl patch , it helps, but not always the case I’m also on 3x75mg of plaxia

I do suffer from chronic pain .. and have suffered 2 strokes from the pain over the last 4 yrs appox

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Profile picture for davidyapp @davidyapp

I have pain from herniated disks as well as a spinal cord tumor removed from C6/C7 (ependymoma) -- 28 years ago. My walking has degraded over time with the pain levels increasing. I've tried many pain drugs & most of them affect me cognitively. The best drug for me is to take 50 mg Tramadol in the morning with my cup of coffee. It takes the edge of my pain. I also use physical therapy to increase the strength in my core and legs ... we also do a lot of stretching exercises. I try to control the things that I can control. I try to stay way from worrying about my state of pain. My pain fluctuates from 5 to a 6. I've tired oblation on my discs ... killing the nerves ... works for a couple months but the nerves grow back. My primary doctor wants me to try an epidural ... I'm not sure how long these last. I usually go to a new technique when my back starts to spasm. The spasms last for a couple of weeks along with sciatica down my left leg. The key for me is to get though these periods with additional pain techniques. I', normally good with my 50 mg tramadol. You just got to try new things when you pain levels are 7 & higher. I have some discussion with my pain doctors at UCLA ... they have all of the tried & true techniques . I try to stay away from surgery as it usually doesn't help & leaves me more longer-term issues.

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@davidyapp
Have you tried decompression ?

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I would be very interested in hearing from participants that are using LDN. Thank you!

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Profile picture for feelbetter2 @feelbetter2

@davidyapp
Have you tried decompression ?

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@feelbetter2

What is decompression? Is it surgery? Physical Therapy? I haven't heard about this one.
Please share.

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Hello, my MRI just came back with the entitled diagnosis. C2 and C3 damage. The pain is overwhelming. Just wondering if anyone else has this condition and what treatment that I might look into pursuing.Thank you for any input,Joey

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Profile picture for joeythompson @joeythompson

Hello, my MRI just came back with the entitled diagnosis. C2 and C3 damage. The pain is overwhelming. Just wondering if anyone else has this condition and what treatment that I might look into pursuing.Thank you for any input,Joey

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hey Joey, it doesn't sound like the full report. It should tell what is causing the arthrorpy. If it's bone spurs (osteophyte complex) you can have those sharp little spurs removed. If it is disc disease, you might have the disc modified or removed. Some patients have radiofrequency to block pain transmission through the medial branch nerve. Call the radiology office that ran the MRI and ask them to send you the full report.

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Profile picture for joeythompson @joeythompson

Hello, my MRI just came back with the entitled diagnosis. C2 and C3 damage. The pain is overwhelming. Just wondering if anyone else has this condition and what treatment that I might look into pursuing.Thank you for any input,Joey

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@joeythompson If that was the report I received, I would call the physician who ordered the test for an explanation. Do you have a follow up appointment with the doctor to discuss the results?

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Profile picture for gently @gently

hey Joey, it doesn't sound like the full report. It should tell what is causing the arthrorpy. If it's bone spurs (osteophyte complex) you can have those sharp little spurs removed. If it is disc disease, you might have the disc modified or removed. Some patients have radiofrequency to block pain transmission through the medial branch nerve. Call the radiology office that ran the MRI and ask them to send you the full report.

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@gently The Report states:
Exam: MRI Cervical Spine WO Cont. Date of Exam: 7-21-2026
The Impression:
Severe Right C2-C3 Facet Arthropathy, A potential Therapeutic Target.
Cervical Spondylosis with spinal stenosis as detailed below.
Mild C2-C3 Right Canal and Ipsilateral Foraminal Stenosis.
Mild C4-C5 Through C6-C7 Canal and Moderate Bilateral Foraminal Stenosis

Technique: Sagittal STIR, sagittal T1 TSA, Axial T2 * GRE, and Sagittal and bilateral sagittal oblique sequences of the cervical spine without IV contrast.

Findings: Cervical vertebral alignment remains anatomic, and the heights of the vertebrae are maintained. Severe right C2-C3 facet arthropathy with prominent T2 signal subcortical marrow and periarticular soft tissue edema (sagittal STIR series 17, image 18). Disc space loss and type 1Modic marrow endplate changes at C6-C7. Normal atlantooccipital and atlantoaxial joints.

C2-C3: A right [paracentral disc osteophyte complex results in mid-right canal and foraminal stenosis. No left foraminal stenosis.

C3-C4: No disc osteophyte complex or herniation. No canal foraminal stenosis.

C4-C5: A mild loss in disc space height and broad disc osteophyte complex results in mild canal and moderate bilateral foraminal stenosis.

C5-C6: A mild loss in disc space height and broad disc osteophyte complex results in mild canal and moderate bilateral foraminal stenosis.

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