1. < Polymyalgia Rheumatica (PMR)
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Where have you experienced pain due to PMR?H

Posted by 23amy @23amy, May 4, 2025

I was diagnosed last year with PMR by my rheumatologist at the age of 50. I am trying to understand this thing. I'm wanting to know where you all have experienced pain in your body due to PMR.

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pegpete | @pegpete | Jul 26 4:11pm
In reply to @bandorino "@eltje It is frustrating when the doctors don't know or can't provide an explanation for this...." + (show)
Profile picture for bandorino @bandorino

@eltje It is frustrating when the doctors don't know or can't provide an explanation for this.
I've been dealing with numbness and sharp stabbing pains in my left foot. My GP ordered an ultrasound to check for blood flow issues in my legs. That was normal. He prescribed Gabapentin for me to try for the shooting pains. (it helps) But my rheumatologist said that the prednisone "typically" wouldn't cause the numbness. All I know is that the tingling started when I was first dealing with the PMR pain when I was first diagnosed in March. It gradually got worse after taking prednisone. I'm inclined to think that there is a lot we don't know about the effects of prednisone on the body.

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@bandorino that sounds more like neuropathy.

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katie614 | @katie614 | Jul 26 4:18pm
In reply to @pegpete "My worst pain was in my upper arms. I could not lift them without crying like..." + (show)
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My worst pain was in my upper arms. I could not lift them without crying like a baby. Getting dressed was excruciating!

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@pegpete Me too!

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prettypatti76 | @prettypatti76 | Jul 27 2:13pm
In reply to @bandorino "@eltje It is frustrating when the doctors don't know or can't provide an explanation for this...." + (show)
Profile picture for bandorino @bandorino

@eltje It is frustrating when the doctors don't know or can't provide an explanation for this.
I've been dealing with numbness and sharp stabbing pains in my left foot. My GP ordered an ultrasound to check for blood flow issues in my legs. That was normal. He prescribed Gabapentin for me to try for the shooting pains. (it helps) But my rheumatologist said that the prednisone "typically" wouldn't cause the numbness. All I know is that the tingling started when I was first dealing with the PMR pain when I was first diagnosed in March. It gradually got worse after taking prednisone. I'm inclined to think that there is a lot we don't know about the effects of prednisone on the body.

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@bandorino Prednisone is very, very hard on all our organs!

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randersonccc | @randersonccc | Jul 27 3:09pm

Most of my pain initially was bilateral shoulders hips and knees. I’m on Actemra for past 9 months and that has kept me my mentioned joints flexible and short spurts of pain. I do also take the Tylenol 650 twice a day as I have the osteoarthritis also. This site has been a tremendous support and help throughout my 3 year condition. Past 2 years I’ve had doctors that listen carefully to my concerns and are willing to try things based on my other conditions. Good luck to you all. Just take it one day at a time.👍🏻🙏🤞🏻

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gud2gro | @gud2gro | Jul 28 12:27pm

behind my shoulder blades. Primarily on one side for several years, (undiagnosed and written off to old age) then to both sides and the back of my neck head within a week. Too painful for me to lie down and sleep. That’s what sent me to the doctor the next day.

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