NF1 and nerve pain from hell post-fibroma surgery. Ideas?

@ccchang Hello Cori, yes, the fusion has eliminated the pain I had from the collapsed disc. I have been surprised with how little pain I have had from the surgery itself. If I didn't have an issue with my flank / oblique muscles, this would have been an easy recovery for me.

I live on the West Coast, the surgeon's name is Dr. Neel Anand, and he is with Cedars-Sinai. He found the disc issue from a full-body x-ray done at his location. Something I should mention is that he is not in any insurance plan network, so you pay him and his team directly before the surgery.

@ccchang does no use electrified needles. Are you thinking of like a TENS unit or dry needling?
My acupuncturist uses just needles and engages my Chi. Works wonderfully.

See a different orthopedic spine surgeon. Spine surgery for me was delayed because of really crappy doctors and being with a neurosurgeon instead of with an orthopedic surgeon. I have permanent leg numbness because of misfiring crushed nerves out of the major nerve root L4 L5. Then like you I have nerve irritation in my foot. Mine is all manageable. But I have complained a lot over the years and I do a lot of work to get the nerves to rebuild and relax. A couple things to recommend is acupuncture on a regular basis and MFR therapy on a regular basis. It can take 10 years for nerves to remodel and rebuild themselves. I think you need to start with a good orthopedic surgeon and see if you are permanently disabled and then how you deal with the reactive nerves. I found that good doses of B12 and iron together have really relieved a lot of my foot neuropathy ridiculous neopathy Problems. You’re going to have a problems exercising if your leg is too numb to support your weight. If so, you need to be into rehabilitation and physical therapy program to make sure that the right things happen overtime. Good luck.

@loriesco Do you recommend B12 as opposed to B-Complex for the nerves?

@ccchang I don’t know. It depends on your dietary habits if you have any gastric or male absorption issues. I inject the B12 and in between I might take the B complex supplement. I also take HEME iron to go with my Bs which seems to really help the nerves. Don’t take the iron all the time because it builds up. The Bs Cantu, so you should be monitored by a doctor. And then you can ask them the question. Before any supplementation if you really want to get your moneys worth, you should have your labs done otherwise you could possibly be wasting your money.

@loriesco Ok thank you.

So, the report frommy Neurologist for my EMG/NCV showed the following: These are the conclusions of the full report: There is electrodiagnostic evidence of : 1. Active chronic denervation in muscles from roots of left L4-S2 with abnormal sensory nerve responses. Differentials include left sciatic neuropathy; left lumbosacral plexopathy; or left L4-S2 lumbosacral radiculopathy with coexisting sensory neuropathy. 2. Distal sensory axonal neuropathy.

@insanepain
I put your post for your report in the Claude app and this is the result:
In plain terms: there's clear evidence of nerve/muscle damage in an L4-S2 distribution on the left, but the report can't pin down from the electrical testing alone whether the culprit is the sciatic nerve itself, the lumbosacral plexus, or the nerve roots — partly because there's also a separate, generalized sensory neuropathy in the legs that muddies the sensory data. Sorting this out usually requires clinical correlation: the pattern of weakness/numbness on exam, back or hip symptoms, imaging (like an MRI of the lumbosacral spine or plexus), and looking for causes of a distal sensory neuropathy (diabetes, B12, thyroid, alcohol, hereditary causes, etc.).

My son's left leg is paralyzed from a traumatic work accident and is having terrible nerve pain for the past 3 days. Shooting down his leg and into his foot. We have tried so many medications and homeopathic remedies and nothing seems to help the pain. Have you had any luck with anything. Any ideas are helpful

@siouxchef1973 Is his leg in the healing stage, or is this an older injury?
If he is healing, this is a sign the nerves are trying to repair/regenerate and it will change over time, and eventually probably go away.
If it is an older injury, a nerve stimulator (TENS) unit, which sends tiny electrical pulses, may be able to interrupt the pain signal and relieve his discomfort.
In either case, he should see his doctor to be checked out to be sure it is not a new problem.

Is his injury covered by workers' compensation?