Replies to Good morning JK. I am in Phoenix going through Mayo. I was told my MELD score…

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Transplants | Last Active: Apr 12 1:55pm | Replies (20)

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@davidgenebarnes

Good morning JK. I am in Phoenix going through Mayo. I was told my MELD score was right in the middle. However being a large man (6,4") and having a common blood type my chances of a quick transplant are quicker. I have been feeling downhill for well over a year now.

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Replies to "Good morning JK. I am in Phoenix going through Mayo. I was told my MELD score..."

nusscass | @nusscass | Apr 11 12:39pm

Out of curiosity how long has your MELD been 12?
I'm stuck on 8 for 4 years. It's being studied, persistently low MELD
Problem is the disease is still marching on.
Im not at Mayo bc of cost above my regular insurance

I've sought help finding anywhere that plans for tjis
My doc at UAB in Birmingham told me when I lost weight that maybe it Shocked my system into stabilizing
That was the last time I saw him bc I may only be a 34 yr veteran critial care nurse ,CRNP. He said I wont need a transplant for 10-15 yrs! I am Decompensated 4 yrs! Im having trouble finding center that fights for the low melds
If I stayed where I was, Id never even make the list
Im so sick Im disabled
Does anyone have experience and know of other hospitals that are trying to get us listed appropriately. My next step is Medically Assisted death. Im not going to have a long, hopeless death bc of my stuck MELD. Please, if anyone knows other hospitals, please! Im only 56
Thanks and good luck to all.
Cassie

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