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@kshansen I can recognize and identify with so much of what you describe. It is hard to describe to someone who is not affected the swings in how I feel day to day or hour to hour. The heat of this summer in SC has been particularly hard to deal with. The orthostatic hypotension and weakness experienced when I'm outside and doing any exertion is SO limiting. I've had to get a handicapped placard for my car so I can get my groceries from the store to my car without passing out. I know exercise is important, but some days it just seems to be too much to ask. I know that pity parties are unhelpful - so I get it out of my system and keep going. I do all I can to help myself, keep up with daily fluid intake and meds to support my BP and try to get a good night's sleep (when the restless leg syndrome cooperates). I also remember to say the Serenity Prayer: God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference. Hang in there.

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Replies to "@kshansen I can recognize and identify with so much of what you describe. It is hard..."

@bmfoster It is hard to describe to someone who is not affected the swings in how I feel day to day or hour to hour.

That is so true about the swings in how I feel! About an hour ago when wife asked about breakfast I was not sure I could even handle that, but I did go ahead and had the cereal with blue berries(sucks that I had to try three times to get the spelling for berries right!) And now I'm thinking about cutting some fire wood! Not! for this month, probably for winter of 2027 and 2028!

@bmfoster
I agree; the heat is definitely detrimental to PD patients. I love to walk outside, but never do it when the heat and humidity are high. I've found YouTube exercise videos to use when the weather doesn't permit outside exercise. During inclement weather, I will often use grocery store delivery services. There is a fee, but it is worth it.

It is a difficult road to walk, but adjustments can make a world of difference. I'd love to hear how others are adjusting to the changes in temperature.