Did anyone have trouble getting used to a bipap after cpap usage?

Posted by brendaelk1558 @brendaelk1558, Jul 20 8:03am

I am having trouble getting used to this new bipap that I was put on after an in-lab sleep study. I have had little sleep in two days!

Interested in more discussions like this? Go to the Sleep Health Support Group.

Hi,
Actually I did have improvement with CPAP. I no longer have what I lovingly called "Old Lady Drip". I should have had stock in the Kleenex company. I no longer have to be armed with five or six tissues at all times. That was the first benefit from the CPAP use.

Switching to the BIPAP with the oxygen seems to have improved my energy levels so I can accomplish more during the day. The feeling that I am not getting enough sleep using all these devices is still a struggle. But the thing I am battling most is my inability to sort and prioritize the things I need to accomplish. Not sure that is anything the PAPs can fix. Bottom line I am sure all this is worth it to me for my general health.

I hope you are able to make this journey and reap the benefits. Keep at it. I am a believer.
Cheers,
Dana

REPLY
Profile picture for dalebout123 @dalebout123

Hi,
Actually I did have improvement with CPAP. I no longer have what I lovingly called "Old Lady Drip". I should have had stock in the Kleenex company. I no longer have to be armed with five or six tissues at all times. That was the first benefit from the CPAP use.

Switching to the BIPAP with the oxygen seems to have improved my energy levels so I can accomplish more during the day. The feeling that I am not getting enough sleep using all these devices is still a struggle. But the thing I am battling most is my inability to sort and prioritize the things I need to accomplish. Not sure that is anything the PAPs can fix. Bottom line I am sure all this is worth it to me for my general health.

I hope you are able to make this journey and reap the benefits. Keep at it. I am a believer.
Cheers,
Dana

Jump to this post

@dalebout123 Yes my daughter said I am never far away from a box of kleenex! I told her some day she will too! I am so hoping I will feel more energetic when I get this sleep apnea treated like it is supposed to be. I found the whole time I was on the CPAP I was not fully getting it right. I also have fibromyalgia so I have brain fog with it anyway. And then it could be my age probably!

REPLY
Profile picture for brendaelk1558 @brendaelk1558

@kudzu I seen my AHI was 14.1 or close to 14. Does that sound right? I see there is two AHI numbers in the settings. Oh The 48 was the events per hour on the display, which is supposed to be under 5! I am usually around 15 Per hour. The F40 is a full face but it is really soft and comfortable. They say to put pillows in for the info in settings though. I really like it better that F10 or F20 but I cannot handle that darn red face on my display! I know what an SD card is but my person at the medical supply store said I do not need one with RESMED's My Air App, I had ask her about that with my CPAP machine. I have clinical Sleep Apnea and obstructive both it said.

Jump to this post

@brendaelk1558
As I understand it, ahi is events per hour. Two different values for events per hour? That’s a new one to me. 14 sounds like what you’ve been seeing but I don’t understand the 48. Maybe take a screen shot and show it to the equipment person.
Yes, I hate that red face too!
It just seems like the machine is criticizing me or something!
If you like the f40, fine, but leaks may be a problem.
Good that you don’t need the sd card. I remember now that if you have your daily MyAir report pulled up, there’s a place on one of the upper corners to tap, and you can access those squiggly lines I was talking about.
I know this is an adjustment; let us know how you’re doing.

REPLY
Profile picture for brendaelk1558 @brendaelk1558

@dalebout123 Yes my daughter said I am never far away from a box of kleenex! I told her some day she will too! I am so hoping I will feel more energetic when I get this sleep apnea treated like it is supposed to be. I found the whole time I was on the CPAP I was not fully getting it right. I also have fibromyalgia so I have brain fog with it anyway. And then it could be my age probably!

Jump to this post

@brendaelk1558 I am so sorry you have fibromyalgia. Constant pain must be a misery. I am 82 years old, have been on thyroid for almost 50 years, but not many other complaints. Well...a back surgery fusing some vertebra, but that's over and not continuing probles. The constant nose drip lasted around five years. It is gone now. The brain fog is all but finished as well. My energy levels are up. I experience some lethargy on and off. And I can't seem to get myself organized like I used to do. Instead I organize my life by pre planning and over organizing while I plan -- putting clothes out ahead of time, etc. I am even more sorry you were not given a machine and a plan that was right for you at the start. You are very brave to trust that this new system and machine will help. I admire you for going ahead with it. Wishing the best for you!
Cheers,
Dana

REPLY

I don't know what I am on. I just breath and it breathes with me.

REPLY
Profile picture for brendaelk1558 @brendaelk1558

@kudzu I seen my AHI was 14.1 or close to 14. Does that sound right? I see there is two AHI numbers in the settings. Oh The 48 was the events per hour on the display, which is supposed to be under 5! I am usually around 15 Per hour. The F40 is a full face but it is really soft and comfortable. They say to put pillows in for the info in settings though. I really like it better that F10 or F20 but I cannot handle that darn red face on my display! I know what an SD card is but my person at the medical supply store said I do not need one with RESMED's My Air App, I had ask her about that with my CPAP machine. I have clinical Sleep Apnea and obstructive both it said.

Jump to this post

@brendaelk1558 If it is true, 14 is much too high. The medical community doesn't consider treatment a success until the nightly AHI runs under 5.0 consistently. At apneaboard, they'll attempt to get you under 3.0 if possible, and many do even better if they stick to the process. But, you have to be open minded, willing to try stuff, anything so that it can be ruled out, and you have to be methodical. You can't change two things at once and then, when it doesn't work, blame BOTH of them. You change one thing at a time, trial it for three nights, and then discard it/the change/new idea if it's a bust.

You said, '...My Air App, I had ask her about that with my CPAP machine. I have clinical Sleep Apnea and obstructive both it said.'

Is it possible you misheard and that she said you have a combination of apneas called 'complex sleep apnea' because you have both CENTRAL and OBSTRUCTIVE sleep apnea? Your quoted text says 'clinical', but I think you may have forgotten or misheard the term she used. It would be worth a phone call to be corrected if so.

If you have complex or central sleep apnea, you need a different device. You need what is called an 'adaptive servo-ventilator.' The best is made also by RESMED. It's costly, but you should shop around, maybe find gently used. But not without learning exactly what your diagnosis really is.

If you have complex or central, and your providers/care-givers insist that a bi-PAP will do, they're plain......wrong. You need an ASV. They'll tell you that in so many words at apneaboard.com, and urge you to ditch your therapist/providers.

REPLY

The place I picked up the BiPAP machine encouraged me to call with any questions, I had a few. Tried a different mask and humidity settings. My sleep doctor also followed up, asked questions and adjusted the breathing rate – it was fast, thought I was running. Dry mouth – doctor recommended XyliMelts for dry mouth – work great for me. Also encouraged to check out https://myair.resmed.com/library. Videos for covering a range of concerns - Adjusting headgear – I didn’t realize there is a difference between upright position verses laying down – side sleep vs back sleep.
Sleep doctor and BiPAP store encourage to call with any questions.

Best wishes,
🍀

REPLY
Profile picture for fourleaf @fourleaf

The place I picked up the BiPAP machine encouraged me to call with any questions, I had a few. Tried a different mask and humidity settings. My sleep doctor also followed up, asked questions and adjusted the breathing rate – it was fast, thought I was running. Dry mouth – doctor recommended XyliMelts for dry mouth – work great for me. Also encouraged to check out https://myair.resmed.com/library. Videos for covering a range of concerns - Adjusting headgear – I didn’t realize there is a difference between upright position verses laying down – side sleep vs back sleep.
Sleep doctor and BiPAP store encourage to call with any questions.

Best wishes,
🍀

Jump to this post

@fourleaf Thanks for the link.

REPLY
Profile picture for gloaming @gloaming

@brendaelk1558 If it is true, 14 is much too high. The medical community doesn't consider treatment a success until the nightly AHI runs under 5.0 consistently. At apneaboard, they'll attempt to get you under 3.0 if possible, and many do even better if they stick to the process. But, you have to be open minded, willing to try stuff, anything so that it can be ruled out, and you have to be methodical. You can't change two things at once and then, when it doesn't work, blame BOTH of them. You change one thing at a time, trial it for three nights, and then discard it/the change/new idea if it's a bust.

You said, '...My Air App, I had ask her about that with my CPAP machine. I have clinical Sleep Apnea and obstructive both it said.'

Is it possible you misheard and that she said you have a combination of apneas called 'complex sleep apnea' because you have both CENTRAL and OBSTRUCTIVE sleep apnea? Your quoted text says 'clinical', but I think you may have forgotten or misheard the term she used. It would be worth a phone call to be corrected if so.

If you have complex or central sleep apnea, you need a different device. You need what is called an 'adaptive servo-ventilator.' The best is made also by RESMED. It's costly, but you should shop around, maybe find gently used. But not without learning exactly what your diagnosis really is.

If you have complex or central, and your providers/care-givers insist that a bi-PAP will do, they're plain......wrong. You need an ASV. They'll tell you that in so many words at apneaboard.com, and urge you to ditch your therapist/providers.

Jump to this post

@gloaming thank you so much! I have never heard of it before! Yes I have central and obstructive. I was not thinking, I also have fibro and it makes me so foggy most of the time! Yes, it is central. And I am having a TOUGH time getting use to this BIPAP! It stops the timer when I go to the restroom, I am always getting the red face, and I do not feel a darn bit better!

REPLY
Profile picture for Phoenix @kudzu

@brendaelk1558
As I understand it, ahi is events per hour. Two different values for events per hour? That’s a new one to me. 14 sounds like what you’ve been seeing but I don’t understand the 48. Maybe take a screen shot and show it to the equipment person.
Yes, I hate that red face too!
It just seems like the machine is criticizing me or something!
If you like the f40, fine, but leaks may be a problem.
Good that you don’t need the sd card. I remember now that if you have your daily MyAir report pulled up, there’s a place on one of the upper corners to tap, and you can access those squiggly lines I was talking about.
I know this is an adjustment; let us know how you’re doing.

Jump to this post

@kudzu Yes I found how to get the report up you are talking about. I can download it too!

REPLY
Please sign in or register to post a reply.