1. < Osteoporosis & Bone Health
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Praise for Osteoporosis Medication

Posted by susanew @susanew, Jul 21 5:30am

I rarely see anyone recommend their medication. It would be awesome to see some positivity for the osteoporosis medication you are taking. Is they anyone who could say they are happy with their drug of choice and why? If so, please share❤️

Thanks 👍

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

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reginacl | @reginacl | Jul 23 10:38am

I can say I’m happy taking Tymlos, although it’s only been three months. It has gotten easier to give myself injections, so that part is a non-event.
My last visit with my GP, I mentioned being on Tymlos and asked the doctor if she has any other patients taking Tymlos. Her response was she has one person on Prolia, which isn’t even the same type of drug.
The lack of knowledge by professionals about these drugs frustrates me. Maybe there should be a focus on having a specialty that covers osteoporosis and the various treatment options.
I’ve learned more on this site than I’ve learned from my endocrinologist. Thank you to all here who share their knowledge and suggestions.

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mss713 | @mss713 | Jul 23 11:49am
In reply to @countryliving "Excellent question to drop here. I’d like to hear stories, also. And the struggles and successes..." + (show)
Profile picture for countryliving @countryliving

Excellent question to drop here. I’d like to hear stories, also. And the struggles and successes to payments for a two year anabolic therapy.
I have Medicare Part A & B and buy the supplement Part D since I started Medicare. (I’m 75 yrs old now).
My PCP wanted me on Reclast from X-ray results in January 2026 of vertebrae compression fracture. After self reading the side effects of Reclast, I requested an Endocrinologist consult. I was able to obtain an appointment in May 2026. Endocrinologist wanted me on an anabolic therapy which I have since agreed to do as the best course of treatment for me.
But I can’t afford it right now.!!
I have to wait until the Medicare window opens in October to December 12, so I can select a NEW PartD policy, that I am hoping will cover Tymlos (my first choice) or Forteo.
*So I’m hopeful I can start my anabolic therapy in January 2027 (because of $$).
So I’d love to read other people struggles and successes with getting Coverage through Pat D. And I do understand there’s a spending limit of around $2100 then Part D coverage kicks in (?) , and how that worked out?
Thank you

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@countryliving The wisdom of CMS. Rather pay for fx care then prevention. Regarding DEXA and bone density. I have been reading a lot about DEXA, and its inability to measure bone quality, i.e. the architecture of bone, v/s just density. REMS, which is ultrasound is becoming more popular and among bone specialist seems to be preferred. This is also something Medicare doe snot currently cover, but if you are able to obtain and pay for out of pocket, it is not too expensive and may help guide decision making.

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gravity3 | @gravity3 | Jul 23 12:21pm
In reply to @reginacl "I can say I’m happy taking Tymlos, although it’s only been three months. It has gotten..." + (show)
Profile picture for reginacl @reginacl

I can say I’m happy taking Tymlos, although it’s only been three months. It has gotten easier to give myself injections, so that part is a non-event.
My last visit with my GP, I mentioned being on Tymlos and asked the doctor if she has any other patients taking Tymlos. Her response was she has one person on Prolia, which isn’t even the same type of drug.
The lack of knowledge by professionals about these drugs frustrates me. Maybe there should be a focus on having a specialty that covers osteoporosis and the various treatment options.
I’ve learned more on this site than I’ve learned from my endocrinologist. Thank you to all here who share their knowledge and suggestions.

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@reginacl

I agree!!!

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carolynfoster | @carolynfoster | Jul 23 5:23pm
In reply to @gravity3 "@ngk1 I hear you!" + (show)
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@ngk1

I hear you!

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I really hope it works for you. I'm supoosed to start that sometime soon and I am very nervous about it .
Apparently i have to get more lab work first. I am 84.

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patwerthman | @patwerthman | Jul 24 9:17am
In reply to @jozer "@alexandercrps what health care?? I am attempting to get a DEXA after treatment on Reclast for..." + (show)
Profile picture for jozer @jozer

@alexandercrps what health care?? I am attempting to get a DEXA after treatment on Reclast for one year and wow what I fight I am having. Medicare will cover it (as medically necessary for monitoring big pharma treatment). Drug is working as far as a CTX measurement goes according to the doctor (from 52 - 78 after year on Reclast but I have no idea what that means) but like pulling teeth to get a DEXA. (Doc feels it is not necessary, and yes, we will talk about that at next appointment.) I would love to say Reclast works great as I was told it would and I have big bone density improvements but without a DEXA I dunno. Very few side effects though, all easily dealt with.

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@jozer great. Can you message me if you get it checked?

Keep fighting for it.

Ins is great. But it is so difficult sometimes also. Ughhhh

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bswpb | @bswpb | Jul 24 4:43pm

I would venture to say most are not thrilled with their choice! I did Forteo in the past and had great results without many side effects. Not everyone can say that!

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