← Return to Being young with chronic pain
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Replies to "VENT: my future and disability pay i get chronic pain in my legs, as a part..."
@alm1234. It appears our situations are different on many levels but the chronic pain, at times unbearable has also been a part of my life for too many years. That incite alone allows me an understanding of your mind set that very few or actually no one could gain without living that "nightmare"! In your initial post you mentioned TWICE that you felt "hopeless"! In so many ways that saps all mental and emotional energy (even physical, at times) resulting in such deep depression which robs the power necessary for reasonable, sane and realistic ideas to the contrary (you still have two arms and two legs, you are not crazy, count your blessings-others have it worse and on and on). Some times even that type of affirmation and positive thinking advice fall on deaf ears, because, after years of this constant hell I need some sort of physical relief, not just words that do not really change any facet of my suffering. Oh, I fully comprehend the benefits of positive thinking, and if I did not zealously work to apply that I would be totally defeated and give up! Even though I seesaw, I will not give up and I sincerely hope you won't also (don't feel so hopeless)! That is what I tell myself and am also advising you. This message is also "just words" but, hopefully they have some power since they are words based on a mutual understanding of chronic suffering and what that does to our mind set and outlook. This is so important that I wanted to take the time to reply, not just punch in a like, helpful or a hug!
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Hi @alm1234, from your spelling of "recognised" with an s, I'm wondering if you might live outside the US. If so, I don't want to make assumptions about the regulations and definitions in your country regarding disability and disabled.
I can certainly understand your frustration when financial and other supports have changed despite nothing in your health status changing. Do you have access to a social worker who could help you navigate the system to get the financial and medical services you need?