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Being young with chronic pain

Chronic Pain | Last Active: Jul 23 12:47pm | Replies (11)

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VENT: my future and disability pay

i get chronic pain in my legs, as a part of a disorder i have. all of this is debilitating, exhausting and i would give anything to not have it. i’m 21, and have been on disability pay for a few years, because i need help/ don’t do most basic things and can’t work because of my health. they’ve just cut it, saying you are disabled (also recognised in other areas of government) but you don’t get as much help as you need to qualify for it. i don’t know what i’m doing wrong because my health hasn’t changed since the original assessment and never will. i’m just getting upset because i now can’t pay for the ideal help i need to manage my symptoms, medications and appointments. i’m just having a hard time figuring out how to find my place and my footing without this

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Replies to "VENT: my future and disability pay i get chronic pain in my legs, as a part..."

Hi @alm1234, from your spelling of "recognised" with an s, I'm wondering if you might live outside the US. If so, I don't want to make assumptions about the regulations and definitions in your country regarding disability and disabled.

I can certainly understand your frustration when financial and other supports have changed despite nothing in your health status changing. Do you have access to a social worker who could help you navigate the system to get the financial and medical services you need?

@alm1234. It appears our situations are different on many levels but the chronic pain, at times unbearable has also been a part of my life for too many years. That incite alone allows me an understanding of your mind set that very few or actually no one could gain without living that "nightmare"! In your initial post you mentioned TWICE that you felt "hopeless"! In so many ways that saps all mental and emotional energy (even physical, at times) resulting in such deep depression which robs the power necessary for reasonable, sane and realistic ideas to the contrary (you still have two arms and two legs, you are not crazy, count your blessings-others have it worse and on and on). Some times even that type of affirmation and positive thinking advice fall on deaf ears, because, after years of this constant hell I need some sort of physical relief, not just words that do not really change any facet of my suffering. Oh, I fully comprehend the benefits of positive thinking, and if I did not zealously work to apply that I would be totally defeated and give up! Even though I seesaw, I will not give up and I sincerely hope you won't also (don't feel so hopeless)! That is what I tell myself and am also advising you. This message is also "just words" but, hopefully they have some power since they are words based on a mutual understanding of chronic suffering and what that does to our mind set and outlook. This is so important that I wanted to take the time to reply, not just punch in a like, helpful or a hug!