Anyone else have a Redundant/Tortuous Colon?

I have had several episodes over appx. 2 year period. It starts with severe cramping across my entire lower abdomen. Gets increasingly worse until ultimately I break out in a sweat all over, not just my forehead, like a slick sweat over my entire body, and both arms go numb from shoulders to fingertips.
The first time it happened my hands started to draw up. Since then, my hands have not drawn up again. But the sweating and arms going numb happens. Sometimes accompanied by bowel movement, sometimes not. But when it occurs, there is a panicky, sick feeling that happens. It's like I'm sick, I'm hurting, I cant breathe but I can...I honestly don't know how to explain it because I don't know what I feel. It's crazy! I literally call out, loudly, "God please make it stop." It's all I can do. In my mind it lasts several minutes. Two nights ago, my husband said the hollering went on for about an hour.
It happens about every 6 months or so. Cardiologists suggest it's vasovagal. But I'm not convinced. I have a tortuous colon. GI doc has to use a pediatric scope to do my colonoscopies. There have been some pre-cancer fold removed a couple times.
I'm at wits end and no one can explain it to make me, nor give me information on how to prevent it. Vasovagal, in my research, does not explain it at all.

Any ideas???

I have had several episodes over appx. 2 year period. It starts with severe cramping across my entire lower abdomen. Gets increasingly worse until ultimately I break out in a sweat all over, not just my forehead, like a slick sweat over my entire body, and both arms go numb from shoulders to fingertips.
The first time it happened my hands started to draw up. Since then, my hands have not drawn up again. But the sweating and arms going numb happens. Sometimes accompanied by bowel movement, sometimes not. But when it occurs, there is a panicky, sick feeling that happens. It's like I'm sick, I'm hurting, I cant breathe but I can...I honestly don't know how to explain it because I don't know what I feel. It's crazy! I literally call out, loudly, "God please make it stop." It's all I can do. In my mind it lasts several minutes. Two nights ago, my husband said the hollering went on for about an hour.
It happens about every 6 months or so. Cardiologists suggest it's vasovagal. But I'm not convinced. I have a tortuous colon. GI doc has to use a pediatric scope to do my colonoscopies. There have been some pre-cancer fold removed a couple times.
I'm at wits end and no one can explain it to make me, nor give me information on how to prevent it. Vasovagal, in my research, does not explain it at all.

Any ideas???

Welcome to Connect, @karena65 and @teresagiselle.

I thought you might be interested in reading this journal article, which offers an in-depth look at redundant colon: https://www.wjgnet.com/1948-9366/full/v10/i2/6.htm

@karena65, as you said, "Key words for me is faith and self-discipline...” So often we tend to equate self-discipline with deprivation, giving up things or sacrificing joy. I thought I’d share an interesting take on self-discipline – something I had read a while ago – where the author encourages readers to associate self-discipline with inner strength, resilience and not giving IN rather than giving UP.

@teresagiselle, I’m glad to know that the fiber powder has helped you find some relief. Since you mentioned family history of colon cancer, I encourage you to also take a look at the conversations taking place in the Colorectal Cancer group on Connect: https://connect.mayoclinic.org/group/colorectal-cancer/
Besides colonoscopy, has your GI recommended any other therapy or surveillance steps?

@kanaazpereira Hello Kanaaz. Do you have any more recent articles referencing Dolichocolon, or redundant tortuous colon? I am working with my GI doc to manage mine, and it is quite a challenge to maintain the balance. When there are comorbidities tossed into the mix, this balance falls apart quickly. So information regarding variants and medically supported strategies for redundant tortuous colon, helps me (and many others) trouble shoot to accurately fend off emergencies and prevent distraction from the main plan.... which is to keep the bowel mobile while preventing dehydration, achieving good nutrition, and maintaining homeostasis of blood electrolytes. GI issues are complicated, and they affect so many bodily systems, and vice versa. Its definitely a balancing act, so information and validated studies are helpful. Thanks Kanaaz! Moderating is a big job!

Has anyone with colon cancer had a virtual
Colonoscopy? My doctor feels that my age,86, and
my narrow colon make a regular colonoscopy
too risky.

@barjar In early 2000's my bowel was perforated during a colonoscopy. Because of ongoing serious bowel issues I was advised to ask for a pediatric scope. I'm 87 and have had three successful colonoscopies in last three years. My bowel shows normal though I have a tortuous colon, redundant colon and have Chronic Intestinal Pseudo Obstructions (Ogilvie's Syndrome) following bowel obstruction surgery Nov./23. Hope the foregoing is a help to you and any others with these conditions.

Has anyone with colon cancer had a virtual
Colonoscopy? My doctor feels that my age,86, and
my narrow colon make a regular colonoscopy
too risky.