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nohrt4me (Jean) avatar

ET progression

Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (13)

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Profile picture for nohrt4me (Jean) @nohrt4me

@1pearl Yes, more info on MPNs needed. I do want to clarify that HU does not halt progression. I don't think anything does that except STC and maybe interferons, but the jury's out on that.

What HU *does* do if started before platelet production gets too high is prevent bone marrow from "overwork," thus reducing chances for mutations that cause progression.

Not trying to talk you into taking HU. Just offering info and support to those who do.

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Replies to "@1pearl Yes, more info on MPNs needed. I do want to clarify that HU does not..."

Hi @nohrtt4me,
Thanks for your interesting post. Will you please provide the scientific evidence and credible sources to support your second paragraph? Unfortunately, I have not been told that information by the O/H and bone marrow transplant specialist I saw.
I always learn a lot from your posts.