Diagnosed with SIBO after pelvic radiation for vaginal cancer
15 months after being treated with external radiation for vaginal cancer, along with cisplatin chemotherapy, I was diagnosed with SIBO. I’ve been treated with two rounds of antibiotics and I am about to start hyperbaric oxygen therapy to repair the radiation damage to my small intestine. This is approved and paid for by Medicare. I have lost over 25 pounds, my small intestine does not digest whatever I eat. I have been in constant pain, this is called radiation enteritis. If anyone has experienced the same issue, please comment I appreciate your input.
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"This study demonstrates that HBOT effectively alleviates gastrointestinal symptoms, promotes mucosal repair, reduces inflammation, and enhances immune function in patients with RE. HBOT significantly decreases the incidence of RE, particularly severe enteritis."
https://pmc.ncbi.nlm.nih.gov/articles/PMC12549627/
I experienced proctitis from radiation and was prescribed hyperbaric oxygen, which was really helpful. You may need 20 to 40 sessions. It was a pleasant experience. I was in a seated chamber with 5 other all cancer patients with radiation effect to different areas. I stopped sessions, not feeling sufficiently protected from Covid.
They showed videos which made the 2 hours seem faster for most. But I always brought a book.
I expect that you will have good results.
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1 Reaction@gently thank you for that positive review of HBOT for radiation damage! and the NIH article. How many sessions did you have before you had to quit during Covid? Were they enough to clear the proctitis or did you have to go for another round after Covid? How are you doing now? Do you feel recovered? RE is a very unexpected effect as I had no issues going through treatment. thank you for sharing your experience!
deedee74,
I didn't send you this information because I hadn't time to recover the link. There is another treatment https://link.springer.com/article/10.1007/s12029-026-01458-2 Reading the article is more important than reading what happened to me. But before I go on, I'd suggest that you start with HBO.
I had primary rectal cancer, which being rare complicated my treatment. I didn't want chemotherapy which delayed treatment. I had 28 session of proton radiation which is less harmful to surrounding tissue but was a direct hit to the rectal epithelium ruining the capillaries there.
During my first rectoscopies the doctor kept telling me how beautiful my rectum was. I thought it was GI humor which can feel strange, but the screen exhibited the smooth white surface of avascular skin that would slough off soon enough, yielding to the second stage irregular, damaged vessels that can't support the epithelium and just bleed. The pathology of radiation damage is cyclic.
All of the oncologists I consulted told me I'd just have to get used to the bleeding. Until searching led me to this article. https://pmc.ncbi.nlm.nih.gov/articles/PMC3539292/ So I called Rodney Edii. He was wonderful, warning me about pinpoint RFA and the importance of having this done with a Halo wand. This wand which looks like a tiny, tiny flyswatter is attached to equipment that controls the time and depth of the radiofrequency. He speculated what has since been proven -- not only does the regrowing epithelium normalize, but the space between treatment spots recovers from the radiation damage. Pinpoint RFA is too deep can be too strong and only stops the bleeding temporarily unless if forms scar tissue--which you don't want.
Eddi couldn't perform the treatment because he was at Sutter where they don't have the equipment.
It took some time to find a practitioner with access to the Halo, partly because the first doctor I called didn't respond. I scheduled at Scripps, but a data breach made them cancel all unnecessary procedures. I scheduled at Stanford even though the doctor hadn't ever performed the procedure. Cheers to him for being willing to try. But truly out of the blue-- I was floating on a pool of water staring at the sky-- when my cell phone rang. It was Dr Buxbaum at USC, who does the procedure all the time, finally returning my call. I could make this even longer by talking about Buxbaum and the amazing staff. I should tell the story of nurse Lulu sometime.
I returned four or five times until now. I am completely over radiation proctitis.
HBO is slow, but it's good for your entire body, even your bones. I had ten sessions before I noticed that the PM95 filtration they'd bragged about was a filter in front of the air vent that never stayed in front of the vent. I might have risked Covid for myself to get rid of the anemia from proctitis, but couldn't risk it for others close to me.
Hyperbaric oxygen didn't resolve the bleeding, but I'm convinced it would have with additional treatments.
I think you'll have good luck.
I had external beam radiotherapy for endometrial cancer and though I've never been diagnosed with SIBO, I've been shocked at the levels of pain bloating can cause - literally crawling to the sink to be sick. I used to think bloating was nothing. I've developed a regime of massage, movement, crouching, kefir and sometimes pre/probiotics, that now seem to help. The burping is so violent I think I've been reborn as a bull frog!
Good luck .
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2 Reactions@gently thank you for all of the information on your own experiences , I’m so glad your research and perseverance paid off for you - so interesting about the ablation - goes to show , you have to be your own advocate ! I just started my 3rd week of hbot and so far I’ve noticed that I can eat better with less pain and have put on a few pounds after losing 25, I remain hopeful!
deedee74, I'm so glad to hear it's helping. In the beginning is so slow and such a passive treatment that many start to wonder. I was in the cutest second story six seated chamber in Encinitas. SD has a basement chamber that was a little depressing.
Are you in five days a week? two hours?
I'm a fairly shy quiet person who became diligent and aggressive with my parents healthcare.
If you haven't had a dexa to measure your lumbar spine, you might consider. Radiation and chemotherapy can be damaging to bone marrow.
Bless your health.
@gently I am doing two hours a day , five days a week. Now in my 3rd week, I agree, improvements are slow but eel like this is a last resort. I'm in a single clear chamber which reduces any chance of claustrophobia but after an hour and a half, I'm ready to get out. The last half hour goes very slow. I had a dexa before I started ny cancer treatment. I will ask for another one once I finish HBOT! Thank you for your input. Hope You are continuing to stay well!
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