@raybepko
Your honesty is refreshing and right on the money. I DO try and stay positive, but there are lots of negatives and obstacles to maneuver around on a daily basis. It is what it is and I frequently remind myself that - pain is inevitable, but suffering is optional. I try not to stay in any degree of self-pity for long - it doesn't accomplish anything and only makes me fearful and miserable. I've learned what I MUST do to stay upright - this summer heat will lead to a face plant if I don't stay hydrated or try to do any activities that require exertion if its 85 degrees or higher outside. I've told some friends about my problems and they know if they ever find me "down" to put my feet in the air - don't start CPR:)) Gut issues and orthostatic hypotension are the worse symptoms to date and my gait and voice issues are running a close second. Trying to live one day at a time. Hang in there buddy - we just have to do the best we can. B