Stem cell treatment for small fiber neuropathy

Posted by jwr @jwr, Mar 19, 2025

I have "ideopathic"small fiber neuropathy confirmed by punch biopsy. I believe it was caused by an unintended chronic exposure to high levels of carbon dioxide from an unvented gas construction heater.

I am considering, out of desperation because nothing else helps, stem cell treatment in Mexico. has anyone else tried this experiment?

Interested in more discussions like this? Go to the Neuropathy Support Group.

hauser | @hauser | 2 days ago

In reply to @debbiehirsch "I had stem cell treatment for my small fiber neuropathy and it didn’t work. Don’t waste..." + (show)

@debbiehirsch if the cells are harvested from old or really sick or people who had chemo the cells will not survive the activation process and the treatment won't work

hauser | @hauser | 2 days ago

In reply to @sikocesca "@cyndigarrison Hi, I have contacted TruStem and am truly considering treatment there! However I would like..." + (show)

@sikocesca if you have had chemo or your really sick the cells they harvest will not survive the activation process, for me trustem has been a blessing I gained way more energy and a lot of my sensory is coming back I can feel hot water on my right again

nancyjg | @nancyjg | 2 days ago

In reply to @hauser "@sikocesca if you have had chemo or your really sick the cells they harvest will not..." + (show)

@hauser That's great you can feel hot water again! What is your age, but more important: What is trustem? My husband is 85, in great shape, but has periferal neuropathy. He's trying red light therapy now but would try stem cell or PRP.

debbiehirsch | @debbiehirsch | 2 days ago

In reply to @hauser "@debbiehirsch if the cells are harvested from old or really sick or people who had chemo..." + (show)

@hauser The cells were harvested from embryo and were injected in my legs nd feet.

sikocesca | @sikocesca | 2 days ago

In reply to @debbiehirsch "@hauser The cells were harvested from embryo and were injected in my legs nd feet." + (show)

@debbiehirsch
Where did you go for that stem cell treatment???
I would like to get it
Frances Casale

sikocesca | @sikocesca | 2 days ago

In reply to @cyndigarrison "@sikocesca mine is the extremities. Motor and sensory. The neurologist told me that it is from..." + (show)

@cyndigarrison
Never heard back from you.
How did it go?
Fran

domiha | @domiha | 1 day ago

In reply to @sikocesca "@cyndigarrison Never heard back from you. How did it go? Fran" + (show)

@sikocesca Hi, Fran!! I'm hoping to hear back from @cyndigarrison as well. I hope she is okay! Maybe she has just not finished all the treatments yet?? But I'm interested, too. Best wishes! Mike