Bladder conditions support: Introduce yourself and connect

Posted by Kelly, Moderator @klp, Sep 26, 2025

Welcome to the bladder conditions support group on Mayo Clinic Connect.

This is a welcoming, safe place for anyone living with a bladder condition, like cystitis, UTIs, overactive bladder, interstitial cystitis or overactive bladder. You’re invited to share your experiences, ask questions big or small, and offer encouragement to others walking a similar path.

Please take these steps to participate in the group:
- Follow the group.
- Browse the topics.
- Use the group search to find answers to your questions.
- Introduce yourself.

No matter where you are in your journey — newly diagnosed, managing symptoms for years, or supporting a loved one — you’re invited to join the conversation and connect with others.

Let’s chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with a bladder condition? (i.e., what condition, how it’s managed)?

Do you have a question to ask or a story to share?

Interested in more discussions like this? Go to the Bladder Conditions Support Group.

gypsy6 | @gypsy6 | Apr 3 5:00pm

Thanks for the comment. I have no clue how to navigate this site but I’m trying! I get up anywhere from 7 to 10 times a night to use the bathroom. Sometimes I go, sometimes I can’t. I’m really tired of this! Gotta get help! If I stand up, I leak. (During the day) sometimes I can catch it before I have to go, but not always. Ah well and so it goes.

tjs41363 | @tjs41363 | Apr 19 5:21pm

hello all. My name is Tom. I have a neurogenic bladder which has led to stage 4 kidney disease.

pml | @pml | Apr 20 8:10pm

In reply to @gypsy6 "Hi, I’m new here and looking for answers for my bladder problems. I’ve had them for..." + (show)

@gypsy6
Hi,
I'm incontinent also. It's definitely not fun! I did have a medication like Botox that worked for 9 years but now they won't give it out anymore. So I'm just living with the situation. I'm 80 and use Poise pads which seem to work rather well. However they are rather expensive. At home during the day I only wear one large pad since I'm close to the bathroom. When I go out shopping I wear two large pads and drink as little liquid before I go but am careful to take some water with me so I don't get dehydrated. I only go a couple places and then back home or to a public bathroom. Also if you put toilet paper on top of the pads they last longer since you are only discarding the toilet paper. Life isn't always fair. I hope your new urologist has some good suggestions for you. Please let us know what he suggests. It might help one of us.
I wish you the best.
PML

vivallyuser | @vivallyuser | 3 days ago

Hello to everyone and thank you for letting me be a member. I have had OAB for over 2 years that is now successfully and fully controlled with a wearable device that you use 3 times a week. PMs are welcome if you would like moral support. God Bless Everyone!