Experience with Zoryve

Posted by ndmcl49 @ndmcl49, Jul 17 8:44pm

Has anyone had experience with Zoryve, good or bad? My dermatologist recently prescribed this topical for my plaque psoriasis. When I went to the pharmacy to pick up my first script, I was informed of a $343 copay! I asked if using GoodRx would lower the cost and was told that it would be double my copay! I decided to go home to think about it, as I’ve already tried other topicals for this condition, two of which had copays, each exceeding $100, and they did nothing for my psoriasis. If Zoryve works miracles, then I might grit my teeth and pay the $343, but not if the results it provides aren’t that significant. Any input would be sincerely appreciated.

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I don't have experience, but you might qualify for a discount program if you don't have prescription insurance. https://www.arcutis.com/wp-content/uploads/ArcutisCares_PatientAssistanceProgram_Application_v1.0.pdf

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I tried Zoyrve samples given to me by my 3rd dermatologist with no relief from severe hand eczema, to the point of wearing gloves daily. Did not see improvement. The list price is around $1000. It did nothing. I’d ask for samples. My latest derm game samples of Anzupgo which is around $2000.
Little if any relief. The soles of my feet started cracking. My Primary Care doc suggested to look at the Rx meds I’m taking for a-Fib. Digging deeper into Flecainide (rhythm controller) I found rare side effects of exactly what was happening to my skin. With the approval of my cardiologist I stopped the drug 3 days ago and for the first time in months I can use my hands without gloves, the healing is visible!
I know that if you’re on Medicare the government will not allow any coupons for the astronomically priced treatments, they have to be approved by part D insurances and still very costly. . It’s so frustrating. I know your pain. I hope you find relief.

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@ndmcl49 Zoryve did nothing for me. What really worked was dermotic oil.

As I have said before each body reacts differently to medications so what works for me may not work for you, and vice versa - but the dermotic oil it may be worth a try. It is available over the counter but you still need a prescription from your doctor. I got my prescription from my family doctor, not my dermatologist who was the one who gave me some samples of the Zoryve (a couple of sample tubes may be all you would need to start, to see if this cream works for you).

Talking of samples, if you do go the Zoryve route perhaps your dermatologist can keep giving you the samples …? Or perhaps you could contact the drug company itself and ask if they have one of those “compassionate plans” …? Just brainstorming …🤷🏼‍♀️

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Profile picture for gently @gently

I don't have experience, but you might qualify for a discount program if you don't have prescription insurance. https://www.arcutis.com/wp-content/uploads/ArcutisCares_PatientAssistanceProgram_Application_v1.0.pdf

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@gently I do have Rx insurance, but appreciate your suggestion.

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Profile picture for nahyduk @nahyduk

I tried Zoyrve samples given to me by my 3rd dermatologist with no relief from severe hand eczema, to the point of wearing gloves daily. Did not see improvement. The list price is around $1000. It did nothing. I’d ask for samples. My latest derm game samples of Anzupgo which is around $2000.
Little if any relief. The soles of my feet started cracking. My Primary Care doc suggested to look at the Rx meds I’m taking for a-Fib. Digging deeper into Flecainide (rhythm controller) I found rare side effects of exactly what was happening to my skin. With the approval of my cardiologist I stopped the drug 3 days ago and for the first time in months I can use my hands without gloves, the healing is visible!
I know that if you’re on Medicare the government will not allow any coupons for the astronomically priced treatments, they have to be approved by part D insurances and still very costly. . It’s so frustrating. I know your pain. I hope you find relief.

Jump to this post

@nahyduk Thanks so much for your input. I’m happy for you that you discovered that Flecainide was the culprit!

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Profile picture for rashida @rashida

@ndmcl49 Zoryve did nothing for me. What really worked was dermotic oil.

As I have said before each body reacts differently to medications so what works for me may not work for you, and vice versa - but the dermotic oil it may be worth a try. It is available over the counter but you still need a prescription from your doctor. I got my prescription from my family doctor, not my dermatologist who was the one who gave me some samples of the Zoryve (a couple of sample tubes may be all you would need to start, to see if this cream works for you).

Talking of samples, if you do go the Zoryve route perhaps your dermatologist can keep giving you the samples …? Or perhaps you could contact the drug company itself and ask if they have one of those “compassionate plans” …? Just brainstorming …🤷🏼‍♀️

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@rashida Thanks for all of your suggestions. I will look into dermotic oil (with which I was totally unfamiliar). So much of this therapeutic journey has been trial and error.

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Profile picture for ndmcl49 @ndmcl49

@gently I do have Rx insurance, but appreciate your suggestion.

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@ndmcl49, even better. With commercial insurance you might get it for free with their copay card https://www.zoryve.com/save-with-zory ve-direct

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Thanks. I’ll explore that.

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Profile picture for nahyduk @nahyduk

I tried Zoyrve samples given to me by my 3rd dermatologist with no relief from severe hand eczema, to the point of wearing gloves daily. Did not see improvement. The list price is around $1000. It did nothing. I’d ask for samples. My latest derm game samples of Anzupgo which is around $2000.
Little if any relief. The soles of my feet started cracking. My Primary Care doc suggested to look at the Rx meds I’m taking for a-Fib. Digging deeper into Flecainide (rhythm controller) I found rare side effects of exactly what was happening to my skin. With the approval of my cardiologist I stopped the drug 3 days ago and for the first time in months I can use my hands without gloves, the healing is visible!
I know that if you’re on Medicare the government will not allow any coupons for the astronomically priced treatments, they have to be approved by part D insurances and still very costly. . It’s so frustrating. I know your pain. I hope you find relief.

Jump to this post

@nahyduk I can imagine your relief! Your primary care doctor sounds like she would have made an excellent pharmacist had (s)he chosen to go into that field!

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Profile picture for ndmcl49 @ndmcl49

@rashida Thanks for all of your suggestions. I will look into dermotic oil (with which I was totally unfamiliar). So much of this therapeutic journey has been trial and error.

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@ndmcl49 I had never heard of demotic oil drops either till my primary physician prescribed the dermotic oil for my ears (I had developed a rash and severe itching in my ears as a side effect of the Bimzelx injection my dermatologist had started me on - surprised he didn’t think of prescribing that, instead of giving me the Zoryve sample to use … hmmm … perhaps because the pharmaceutical company encouraged him to push it …? 🤔)! You’d think a dermatologist would have known about this oil, eh …!?

Although prescribed to use as one drop in each ear, I had difficulty getting the drops into my ear so I used the oil with a Qtip dipped into the bottle and applied to the affected area in my ear. Worked like a charm - now I only do this when I get a flare.

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