@beachlvr My heart goes out to you for all you’re having to deal with. And it looks like it all came at one time with diagnosis on 6/1 and hitting the chemo right away on 6/2. My story was similar in that we both got diagnosed quickly with our respective diseases and started treatment ASAP. Didn’t have time to think about it…just jumped in with both feet! I appreciated that aspect because I didn’t have time dwell on the ‘what ifs’.

By the 2nd and 3rd week after chemo, when your blood numbers have dropped significantly and your energy plummets, so does the mental energy which helps keep you positive. There’s not much fighting power when you’re almost literally running on empty! I remember it being one helluva an emotional rollercoaster ride that I just wanted to end…to have the car pull into the station and we’re done! “But wait, there’s more!” 🤪
It’s ok to give yourself grace and have some meltdowns in the process. This is quite literally a fight for your life and you’re not going to take it lying down (except when you’re exhausted LOL). But you know what I mean. Stay the course, let the meds do their thing. The side effects suck but, I have to say, when you come out the other side a victor over this Burkett Lymphoma, you’ll feel pretty darned proud of yourself.

I know it sounds trite, but take one day at a time. Some days I watched the big hand sweep around the clock. If I could make it one more minute, I could make it five more and so on. Distraction is a helpful tool right now by refocusing your thoughts. So if you have a hobby such as painting or sketching, or needle work, reading, crossword puzzles, meditation…take a few minutes every day to zone out. Binge watching series on Netflix. Walking is also good for circulation, helping the body to clear the toxins, along with drinking plenty of room temp water.
I’m here anytime you need an ear!

How do you feel after the methotrexate LPs? Do you get headaches from those?