Don't be put off with the "C" word. LeukemiaLymphomaSociety has wonderful website with resources and information. Go to a conference if near by. I went and was very impressed with all the presentations. BTW, they renamed themselves BloodCancerUnited. I've been taking hydroxyurea (HU) for 6 years now, only first year my gut was unhappy. Platelets under control, and I'd rather be taking HU than getting a stroke or heart attack from clots....