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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

Posted by citizendeveloper @citizendeveloper, Jan 6, 2025

I was diagnosed with FS-DFSP. I've already had my MOHS surgery, and today I meet with my Oncologist to get the results of my CT scan. Is there anyone else who is currently fighting this rare cancer? Also, did you buy a lottery ticket? 😀

Laugh or cry, why not do both!

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humbl3reh192 | @humbl3reh192 | 1 day ago
In reply to @anikadow "@humbl3reh192 Thank you so much for your kind and encouraging words. They truly mean a lot..." + (show)
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@humbl3reh192

Thank you so much for your kind and encouraging words. They truly mean a lot to me. It can definitely be mentally and emotionally exhausting, so I really appreciate the reminder to take care of my mental health.

I'm also grateful to connect with someone who understands this journey. Since FS-DFSP is so rare, it helps to be able to talk with someone who has gone through a similar experience.

I'm glad to hear your second surgery achieved clear margins, and I sincerely hope your MRI next month brings reassuring news and shows that everything is healing well. I'll be keeping you in my thoughts and wishing you all the best. Please keep me updated on how it goes.

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@anikadow Your welcome.

Definitely, it helps when someone is going through this similar phase,
The assuring thing is that this disease is very curable and can be controlled even though its very rare.

Thank you for your kinds words i appreciate it and will keep you posted regarding the MRI.

do let me know about your what's the next step of your procedure will be

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