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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?

Sarcoma | Last Active: 21 hours ago | Replies (55)

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@cmiller1122 update: I finished my radiation which went well. Experience was mild redness and hair loss in the targeted area which was minimal and not noticeable with hair worn down. The radiation was low dose and targeted which leaves me the option of future use if reoccurance does happen. Following radiation I underwent 1st stage of surgery to remove cancer using technique wide excision radical resection. In previous communication I had mentioned MOHS techniques which I thought was the technique being considered and used. When speaking with my surgeon she stated since the cancer has the FS component and is aggressive it is best to go with the wide excision technique, also something to note I did not know is when this type of cancer is cut into it has a tendancy to seed and grow in the cut line, which in my opinion explains why wide excision a more aggressive approach was used. Following the surgery they covered open wound using a negative pressure dressing stitched in. First surgery completed on the 7/10/26 with cleared deep margins achieved at 0.1 cm removed tumor/diseased skin measuring 3 x 36 x 0.2 cm resulting in clear margins succesful clear margins. Also noted was after radiation their was no more detection of the FS, only DFSP from surgical pathology. I am doing well so far and just preparing for the second stage of the surgery which I'd the reconstruction fhase set for 7/28/26 which can be anywhere between 5 to 8 hours do due possible skin graft locations. I will keep this updated as thing progress. Also I am documenting my experience on my Facebook page so if interested you can find me under Charity Miller located her in florida. Please feel free to share any information on this cancer or any other cancer on my page. May God bless us all in this journey.

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Replies to "@cmiller1122 update: I finished my radiation which went well. Experience was mild redness and hair loss..."

@cmiller1122 how many radiation sessions you had and what was the dose. I hope and wish you all well in your second surgery. Couldn't find your page. Possible if you can post the link