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Just diagnosed with tumor: What question should I ask the urologist?

Posted by pattymltn @pattymltn, Jun 25 7:45am

I was found to have a tumor on the anterior pole of the right kidney. 2.6cm and encapsulated. Doc I am seeing is a surgeon but I am hoping I may be a candidate for cryoablation. What questions should I ask the surgeon today as he might lean towards surgery?

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gangcarotid1 | @gangcarotid1 | 3 days ago
In reply to @quirky9 "@gangcarotid1 I had my radical on Monday. Home in under 24 hrs. My surgeon said my..." + (show)
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@gangcarotid1
I had my radical on Monday. Home in under 24 hrs. My surgeon said my right kidney is doing fine. Due to location, my tumor could not be removed and nephrons saved. I am glad I didn't have a choice actually. I know the suspected ccRCC is in a lab and not in my body anymore. Waiting on stage and grade. My chest, thyroid, top of liver CT showed clear prior to surgery. Pain is manageable. My diet is not as fabulous as you and patty! Kudos! But I have changed it. No red meat, no processed, no salt, no alcohol. More clean food. Im not diabetic. Hoping for low stage, grade on pathology. Dealing with the stress of being forced out of my job 10 days before major surgery has not helped, but I have tried to put it to the back of my priorities. Still have health insurance. Will get 1 more check 15th of the month. Unsympathetic, unethical, born into money and arrogant boss, who by the way had Wilms at 5 and has always had 1 kidney, thinks what I am going through should be a walk in the park! F#CK him and kidney cancer. If you want to see my tumor let me know.

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@quirky9
Sure!🫣

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pattymltn | @pattymltn | 3 days ago

Thank you for sharing your experience, although it sounds like you had much going on personally as well. So encouraging to know you were home within 24 hours. I am sure you are anxious to get the biopsy back. My kids want me to get the tumor out and just put it behind me. Because I have options for removal and the tumor is 2.6cm I will wait until December to see if any change.Did you have any symptoms prior to diagnosis? How did docs find the tumor? Mine was incidental to elevated liver enzymes.

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quirky9 | @quirky9 | 1 day ago
In reply to @gangcarotid1 "@quirky9 Sure!🫣" + (show)
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@quirky9
Sure!🫣

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@gangcarotid1
Not pretty. Whole kidney with a 6 x 6cm in the middle. The dark spots are blood hemorrhage. Renal cancer has vascularity. This a bivalved or fileted kidney so you see the inside. Dark maroon sides and bottom kidney. Fat is all the yellow mess on the outside .

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gangcarotid1 | @gangcarotid1 | 1 day ago
In reply to @quirky9 "@gangcarotid1 Not pretty. Whole kidney with a 6 x 6cm in the middle. The dark spots..." + (show)
Profile picture for quirky9 @quirky9

@gangcarotid1
Not pretty. Whole kidney with a 6 x 6cm in the middle. The dark spots are blood hemorrhage. Renal cancer has vascularity. This a bivalved or fileted kidney so you see the inside. Dark maroon sides and bottom kidney. Fat is all the yellow mess on the outside .

Jump to this post

@quirky9
Thanks for sharing; reminds me I should be careful what I ask for!🫢I never saw the tumors removed from my kidney and Im very ok with that. My tumors werent within my kidney; were on the outside, top and bottom, along with the 19 oz of fat they fileted off my kidney..the fat actually isolated my bladder from the malignancy. So, they did ablation? Otherwise, Im shocked you're already home after 24 hrs. But Im confused by seeing the pic, if you didnt get cut open? How does that work? Laparoscopic?
Im sorry your boss was so uncaring. I am 70; retired at age 60. Can actually say in the 40 years I was employed, I only had one supervisor that was good at being the boss. At various times when I was the boss, I always kept it at the front of my mind how Id want to be treated if I WASNT the supervisor/boss/foreman.
Praying now that each day gets better for you!

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