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Post prostate cancer Radiation therapy

Posted by mhballa @mhballa, 5 days ago

Under went Radiation therapy for prostate cancer7 months , during Radiation there was mild pain in the anus but subsided then after 4 to 5 month, pain in the anus with blood drops and mucus after motion, especially when straining. Pain is severe, been using diclofenac, Tylenol tablet with doxiproct and Lidocaine ointment and mesalamine suppository to manage the pain but never subsided.
Dose budesonide rectal foam help in treating it.
Is there a time frame for when the pain start to reduce and stop, I hear 1 year for the maximum effect then subside. Is there a way to treat it or manage it?

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tzach | @tzach | 2 days ago

Thanks, according to pet mri&ct my pelvic lymph node are clean there is only one pathological evidence near the bladder in the prostate bed. My doctor recommends direct radiation in 5 times and I am wondering if it too strong because it is a delicate place and I would prefer less damage to my erection nerves I am still active sexually and I don’t want to give it up so, which procedure less harmful, proton or futon direct radiation?

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29modela | @29modela | 1 day ago
In reply to @tzach "I’m 77 years old 13 years ago my prostate was removed separating my erection nerves at..." + (show)
Profile picture for tzach @tzach

I’m 77 years old 13 years ago my prostate was removed separating my erection nerves at that time my glison score was 7(3,4) , today my psa reached 0.2. After pet mri My doctor recommends direct radiation to the tumour in the prostate bed, is protons radiation is OK and what are the side affects?

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In reply to @tzach
I was diagnosed at age 70 with stage 1 prostate cancer in July, 2016. PSA was 2.3, Gleason was total 7. Had prostate removal in November 2016. Cancer was stage 4, Gleason was 12 tens and after removal, PSA was >.05. Surgeon wasn't sure he got everything and sent me to Proton radiation. Had 35 of 39 scheduled sessions. Developed radiation enteritis and cystitis around session 35. Had explosive bowel movements and incontinence for 9 years. Learned to cope. At 10 years from cancer diagnosis, I was diagnosed with chronic radiation enteritis and cystitis. This is bleeding from the bladder and unbelievable pain in the intestine for about 4-6 hours a day. I was 160 pounds, am now 145. I just finished 30 Hyperbaric Oxygen Chamber treatments. I'm beginning to improve. Should take 4 months to complete some level of recovery. In 2017, when I had Proton radiation, I was told that my bladder and intestines would be less effected than with the older radiation. My cancer returned 14 months after Proton radiation. My doctor gave me 18 months to live since the cancer was so aggressive. I was never told the radiation could develop into a chronic state later in life. I think they figured I'd only live 18 months so why mention it. I'm now 80.5 and subjected to another medical crisis. Everyone's cancer journey is different. Just role the dice and hope for 7s.
I hope someone from Mayo clinic reads this. I need a nutritionist who can help with someone with cronic enteritis. My gastric doctor doesn't really understand this. My wife found AI helpful in preparing meals for me and figuringoutwhatI can and can't eat. I need to gain my strength back.
Good luck with your decisions.

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Jeff Marchi | @jeffmarc | 1 day ago
In reply to @29modela "In reply to @tzach I was diagnosed at age 70 with stage 1 prostate cancer in..." + (show)
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In reply to @tzach
I was diagnosed at age 70 with stage 1 prostate cancer in July, 2016. PSA was 2.3, Gleason was total 7. Had prostate removal in November 2016. Cancer was stage 4, Gleason was 12 tens and after removal, PSA was >.05. Surgeon wasn't sure he got everything and sent me to Proton radiation. Had 35 of 39 scheduled sessions. Developed radiation enteritis and cystitis around session 35. Had explosive bowel movements and incontinence for 9 years. Learned to cope. At 10 years from cancer diagnosis, I was diagnosed with chronic radiation enteritis and cystitis. This is bleeding from the bladder and unbelievable pain in the intestine for about 4-6 hours a day. I was 160 pounds, am now 145. I just finished 30 Hyperbaric Oxygen Chamber treatments. I'm beginning to improve. Should take 4 months to complete some level of recovery. In 2017, when I had Proton radiation, I was told that my bladder and intestines would be less effected than with the older radiation. My cancer returned 14 months after Proton radiation. My doctor gave me 18 months to live since the cancer was so aggressive. I was never told the radiation could develop into a chronic state later in life. I think they figured I'd only live 18 months so why mention it. I'm now 80.5 and subjected to another medical crisis. Everyone's cancer journey is different. Just role the dice and hope for 7s.
I hope someone from Mayo clinic reads this. I need a nutritionist who can help with someone with cronic enteritis. My gastric doctor doesn't really understand this. My wife found AI helpful in preparing meals for me and figuringoutwhatI can and can't eat. I need to gain my strength back.
Good luck with your decisions.

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@29modela
You should try to find yourself a palliative care doctor. They will help you with all the different issues you have as a result of treatment and at least try to resolve them. They specialize in doing this, so this may help.

It’s really crazy how they tell you how long you’re going to live. It’s almost always wrong. I know many people that have lived a decade or more after being told a short time and they were going to die soon from prostate cancer. Yes, it does happen with some people, but not most.

Sorry to hear you’re having so many issues now. I hope you find a solution.

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