Metastatic colon cancer on the vaginal cuff

Posted by myjiggers1 @myjiggers1, Dec 11, 2024

Finished Folfox 5fu in February when I had stage 3c right colon cancer. I was hoping it would have worked at least for afew years. A few weeks ago I started to bleed and knew it wasn’t a good sign with a hysterectomy. Praying they would find a torn cuff that needed surgery, I went to my gyn onc for an exam to be told there was a mass. It had not been there 2 months prior at my routine visit. So my prayer switched to please be the uterine cancer. It was not. So with a CT that showed enlarged lymph nodes in the pelvic region, we are in Stage 4 with cancer on the vaginal cuff and nodes. Only a 1-3% chance of getting it in that area. I know its a longshot, but anyone else deal with this? My onc is looking at my markers to see if I have any markers for other cancers in the specimen because its not acting like colon cancer and she hopes to treat it with another cancer treatment that will attack it better. Folfiri is her 2nd choice and I don’t think she feels confident in it. She didn’t say it, but with the aggressive nature of this and the folfox not working beyond this short time, I can tell its an uphill climb. Any real difference between folfiri and folfox?

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ferrazcri | @ferrazcri | 1 day ago

In reply to @myjiggers1 "@ferrazcri Hey you! Checking in to see how you’re faring and if your team came up..." + (show)

@myjiggers1
Hey girl!

I’m glad you’re going to ask your doctor about the test. I would also suggest you to ask about any clinical trials that might suit your case (I’m actually going to ask about trials as well).

I have talked to my doctor and the team is still deciding what is the best option. She said it’s caught early and it’s very small, but they want me to treat it first, then they will consider surgery.

She talked about a chemo pill (xeloda or lonsurf) but it’s has not been decided yet.

I’m making peace with the fact I’ll be back on chemo. Keeping myself grateful for being alive! 🙂
I’m seeing a gynecologist next week who’s going to evaluate the lesion and probably come up with more details and/or plans.

Good luck on your appointment tomorrow!🍀🙏🏼❤️

Let’s be in touch!

myjiggers1 | @myjiggers1 | 8 hours ago

They said they are extending my break which is confusing to me because they have been “we don’t want to give you too many breaks because its so aggressive and want to keep it out of your organs” to “lets wait and see if we can extend your break until something pops up on your scans”. I don’t like playing Russian roulette with my life… they said they would talk to my Dr. about the ctdna. Said they have access to it and its a great tool but they are unsure how to use it. I need to make it to my sons college graduation in three years… so I am nervous about this.

I was never offered the pills for chemo, something about harsher side effects lasting longer and if I skipped a dose yada yada yada. But you can do it. We are so much stronger than we think we are. Chemo seems like a dirty word, and I am just getting past the ptsd from injections and hookups so I understand. I go through mini panic attacks every three weeks when chemo approaches. So this break was needed. But I know the status quo as do you. Its good to get the size of it and location and whatnot figured out before doing anything like radiating it. Did they discuss that? Are you bleeding from it? I will keep you in my prayers girl.