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Bullous pemphigoid
I went to bed one night fine and dandy, woke up next day with a light rash on top of both my arms. It rapidly got angrier, big red very itchy. Was spreading quickly. I went to my Dr. who had no idea at first what it was. Discovered it was Bullous pemphigoid. It's been almost 2 months and I'm finally getting better. Pure agonizing hell it's been for a lot of it. Eventually I had jawbreaker sized blisters, also some close to baseball size all over my lower legs, ankles, top of my left foot. When they eventually popped that left me with a lot of raw flesh and pain. I would sure love to hear about your story and how your'e making it through. At times I felt very terrified and alone and I have a wonderful family and husband helping me. I have so much more to say about the meds and lack there of but I'd like to see if I'm going to get any response here. I'm a 59 year old lady and this is my very first support group. Please feel free to chat with me, maybe sharing some of this misery will help, not to mention the sharing of experience. Thank you for reading!
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The nice part of this support group is we can share what works and doesn't work for us personally. I find it hopeful that some of you have experienced a lessening of outbreaks with treatment. It is helpful to read what side effects dupixent can have, and some of you don't have side effects.
If you read the literature and studies, its possible to have BP for 5 years which was depressing. I like doing research and am beginning to think some of the studies which have been done on the disease are nonsense linking it to other neurological diseases. There are truly few people who have this so our experiences are important. Thanks for sharing.
I am 83 and I know how you feel. It started in my arms and my back but most of the blisters have been on my shin.My wife is still banaging them after 3 months.. I think I am getting better. I have lung cancer and I think I can trace mine to the immunetherapy treatment I had.No complaints because the Keytruda has my lung cancer stable.Hang in there.