1. < MAC & Bronchiectasis

MAI drug resistant??

Posted by becky33 @becky33, Jul 25, 2017

After 7 full month's of taking the big 3 my monthly sputum tests have come back positive again. Dr Anderson at Washington University in St. Louis is going to test me for being resistant to the big 3. What will happen if I am drug resistant? Anyone have that experience? I was diagnosed with MAI Jan 2017 and started the drugs on 1-20-17. Went to Dr. Joseph Craft my cardiologist for routine check up and he thought it was very strange because I was the 3rd MAI patient he'd seen in 6 mo's in the St. Louis, Mo. area. Dr Craft said we were all female, white, and in our mid 70's. Any of you from the St. Louis area that go to Dr. Craft? So upset over not being able to get a negative sputum culture after 7 mo's. Need some encouragement???

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jul 28, 2017
In reply to @heathert "@becky33 My MAI took a year of the big 3, then still tested positive for MAC..." + (show)
@heathert

@becky33 My MAI took a year of the big 3, then still tested positive for MAC so then I went onto inhaled Amakacin, and was negitive in the first month of taking it, Amakacin goes straight to the lungs which is much more successful maby you could discuss Amakacin inhaled with your doctor after a year of the big 3. Let us know how you get on.

Jump to this post

Hi Heather. The cavities closing sounds the best news! Yay!!! Congrats on the negative result on the MAC. Keep taking GOOD care of yourself. This post is exactly what we needed for inspiration. Thanks! - Hugs

REPLY
View MoreView Less
Please sign in or register to post a reply.