Brinsupri for MAC and BR? Any good results!

Posted by gurmom @gurmom, 5 hours ago

I have fatigue and alot of mucous with MAC and Bronchiectasis( diagnosed in January.)Do not want to take antibiotics but would consider Brinsupri if it would help??!

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

In a recent webinar, a research physician noted that some of the most important questions may only be answered during Phase 4, which is the period after a drug is approved and used by a broader, more diverse patient population.

Among the questions they hope will be answered:
1. How will people with NTM disease respond to Brinsupri?
2. How will people with coexisting conditions, such as autoimmune diseases, and cancer respond?
3. For those with bronchiectasis, will Brinsupri have any effect on the underlying bronchiectasis. Could it improve the BE, slow its progression, or even possibly lead to reversal of airway damage?

I hope you'll hear from others who have NTM and are taking Brinsupri. I do not have NTM and I've been on Brinsupri 25 mg 9+ months, and I can say that my symptoms have improved quite a bit. It wasn't an overnight change. It took more than six months before I began to notice a meaningful difference.

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