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Had a right tentorial dAVF? Had surgery to cut off feeder vein?
Hii ...I am new to this group..my husband is suffering from Right Tentorial Davf, with symptoms of tingling and numbness in the limbs, unable to walk without support, bladder and bowel are affected because of spinal cord edema and our doctor has suggested for surgery to clip the main feeder vein .Has anyone undergone for the same surgery? I would like to understand the risks and success of it and wether full recovery is possible after surgery.
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Hi, @davfr - welcome to Mayo Clinic Connect. I started a brand new discussion and moved your post here, as I thought this topic merited it and others might be interested in discussing dural arteriovenous fistulas (dAVFs) and the treatment suggested by your husband's doctor.
I imagine that experiencing tingling and numbness in the limbs, inability to walk without support, and an affected bladder and bowel are are challenging for your husband and for you.
Here is some Mayo Clinic information on this type of AVF that you may find useful:
- Dural arteriovenous fistulas https://www.mayoclinic.org/diseases-conditions/dural-arteriovenous-fistulas/symptoms-causes/syc-20364280
Are you his caregiver at home, or is he living in a facility outside your home or having skilled nursing come help care for him with his symptoms?
@lisalucier Thankyou so much. I am his care giver at home, thought he is independent in doing his daily chores. He uses walker for support to walk.
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1 ReactionTagging a few others on Mayo Clinic Connect who have talked about dural arteriovenous fistulas (dAVF) @ganana @scubatropic @snoopyrn. They can let you know if they've had a dAVF and if they have had clipping surgery to treat it. If so, they may have information on the risks and successes of this surgery. @cynaburst also may have some thoughts on this.